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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20240907T063000
DTEND;TZID=America/New_York:20240907T160000
DTSTAMP:20260404T122751
CREATED:20240418T004205Z
LAST-MODIFIED:20240910T155906Z
UID:2065-1725690600-1725724800@www.nfnortheast.org
SUMMARY:13th Annual Coast to the Cure
DESCRIPTION:NF Northeast is excited to announce our 13th Annual Coast to the Cure ride to benefit NF Northeast on Saturday\, September 7th\, 2024 at Stage Fort Park in Gloucester\, MA! \nRegistration Fee – $25  \nFundraising Minimum – $275 \nRegister or Donate Here \n*Online registration ends Thursday\, September 5th at 11:59pm. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. Day-of registration opens at 6:30am and staggered starts will begin at 7am (see below for details). Registration fee includes rest stops with food and drink along the course\, SAG wagon\, post-ride lunch by Amigos Locos food truck and entrance to the beer garden (must be over 21 years of age). \nRace Schedule:  \nRegistration – 6:30am \n66 Mile Ride start time – 7am \n40 Mile Ride start time – 8am \n24 Mile Ride start time – 9am \nLunch/Beer Tent – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site. Price: $25 per ticket. \nFor more information contact: Sara-Jane at sjgriffin@nfnortheast.org \n*The fundraising minimum of $275 is required of all riders before receiveing a Coast to the Cure NF Rider Packet \n  \nThank you to our sponsors: \n \n \n  \nSpecial thanks to our media sponsor: \n \n \n 
URL:https://www.nfnortheast.org/event/13th-annual-coast-to-the-cure/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/04/Coast2024.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240916T090000
DTEND;TZID=America/New_York:20240916T170000
DTSTAMP:20260404T122751
CREATED:20240605T125640Z
LAST-MODIFIED:20240917T152222Z
UID:2138-1726477200-1726506000@www.nfnortheast.org
SUMMARY:2024 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 16th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nGolfer Registration \n\n\n\n\n$175 – Individual \n$700 – Foursome \nRegister Here \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, giveaway\, and supper following golf.  \n\n  \n  \n  \nThank you to our sponsor: \n \n 
URL:https://www.nfnortheast.org/event/2024-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/2024-Fall-Golf-Classic.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240916T190000
DTEND;TZID=America/New_York:20240916T200000
DTSTAMP:20260404T122751
CREATED:20240821T124822Z
LAST-MODIFIED:20240917T152227Z
UID:2294-1726513200-1726516800@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #1
DESCRIPTION:Join us for our first of three sessions in our Young Adult Empowerment Series. This session will focus on social anxiety and tools you can use when connecting with other young adults. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions. \nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-1/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T120000
DTEND;TZID=America/New_York:20240917T130000
DTSTAMP:20260404T122751
CREATED:20240821T152012Z
LAST-MODIFIED:20240917T175518Z
UID:2318-1726574400-1726578000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rukin Gold and Dr. SantaCruz
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin our second session to meet Dr. Rukin Gold\, NF Specialist and Child Neurologist\, and Dr. SantaCruz\, Pediatric Hematologist and Oncologist\, from Dartmouth Hitchcock Medical Center’s NF Clinic. They will be speaking about NF and discussing new resources and opportunities for patients living in the New England/New Hampshire area. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dartmouth-hitchcock/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/September-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T190000
DTEND;TZID=America/New_York:20240917T200000
DTSTAMP:20260404T122751
CREATED:20240821T173849Z
LAST-MODIFIED:20240917T231229Z
UID:2322-1726599600-1726603200@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, September 17th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-sept24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/September-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240930T190000
DTEND;TZID=America/New_York:20240930T200000
DTSTAMP:20260404T122751
CREATED:20240821T125007Z
LAST-MODIFIED:20241001T144123Z
UID:2297-1727722800-1727726400@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #2
DESCRIPTION:Join us for our second Young Adult Empowerment session focusing on how to be your own best advocate as you transition to adulthood – medically\, socially and in work/education settings. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the session. \nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-2/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session2.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241008T120000
DTEND;TZID=America/New_York:20241008T130000
DTSTAMP:20260404T122751
CREATED:20240821T151119Z
LAST-MODIFIED:20241009T151344Z
UID:2313-1728388800-1728392400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the third session of our Fall 2024 Tuesday Takeaways series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will share helpful resources and strategies to use when advocating for those we care for while engaging with their medical team and beyond. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/October-1-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241012T090000
DTEND;TZID=America/New_York:20241012T100000
DTSTAMP:20260404T122751
CREATED:20240904T175745Z
LAST-MODIFIED:20241015T150924Z
UID:2350-1728723600-1728727200@www.nfnortheast.org
SUMMARY:NF Charla de Café - Octubre
DESCRIPTION:¡Únase a nosotros en este chat comunitario para hispanohablantes realizado completamente en español! \n¡Los pacientes de NF y sus familiares están invitados a unirse a nosotros el sábado 12 de octubre por la mañana a las 9 a.m. para una charla de café virtual en español para crear comunidad! Estos chats son oportunidades fantásticas para conocer a otras personas afectadas por NF y tener conversaciones informales sobre las preocupaciones y preguntas del díaa día que puedan surgir. ¡Esperamos que puedas unirte a nosotros! \nRegístrate Aquí \n*Después de registrarse\, recibirá un correo electrónico de confirmación con información sobre cómo unirse a la reunión
URL:https://www.nfnortheast.org/event/nf-community-chat-octubre/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/09/October-24-SPANISH.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241013T073000
DTEND;TZID=America/New_York:20241013T130000
DTSTAMP:20260404T122751
CREATED:20240619T221902Z
LAST-MODIFIED:20241015T150927Z
UID:2198-1728804600-1728824400@www.nfnortheast.org
SUMMARY:2024 Amica Newport Marathon
DESCRIPTION:We’re so excited to offer a limited number of bibs for the 2024 Amica Newport Marathon in Newport\, Rhode Island! Join us on Sunday\, October 13th for a lovely fall running event on the northeast shoreline. Our bib offerings include the full marathon\, the half marathon\, OR virtual participation in either event—with a fundraising minimum of $500\, which includes your race registration fee! You’ll also have the chance to design your own personalized fundraising page to help motivate donors! \nRegister Here \n*Use above link to sign up with Team NF Northeast for no registration fee. Once registered\, a NF Northeast staff member will reach out with further instruction on setting up your fundraising page. \nNF Northeast offers coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Newport Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running\, nutrition\, fundraising\, and more! \nBib numbers are extremely limited\, so act fast to claim your spot for this annual fall classic race! Half and full marathon are USATF-certified. 
URL:https://www.nfnortheast.org/event/2024-amica-newport-marathon/
LOCATION:Easton’s Beach\, 175 Memorial Blvd\, Newport\, RI\, 02840\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/Newport-Marathon.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241014T190000
DTEND;TZID=America/New_York:20241014T200000
DTSTAMP:20260404T122751
CREATED:20240821T125419Z
LAST-MODIFIED:20241015T150931Z
UID:2301-1728932400-1728936000@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #3
DESCRIPTION:Please join us for our third and final session of our fall Young Adult Empowerment series. The focus will be identifying hurdles of living with a chronic medical condition and establishing tools to help you achieve your goals. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions. \n\n\n\n\n\nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-3/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T121500
DTEND;TZID=America/New_York:20241015T131500
DTSTAMP:20260404T122751
CREATED:20240724T140258Z
LAST-MODIFIED:20241022T150505Z
UID:2272-1728994500-1728998100@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Amanda Bergner
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the fourth session of our Fall 2024 Tuesday Takeaways series\, we welcome NF/SWN expert and genetic counselor\, Amanda Bergner\, to talk about various aspects of family planning across the lifespan for people with NF or schwannomatosis and their loved ones. Amanda will provide an overview of recent literature on topics such as birth control\, dating and disclosure to others\, considerations in pregnancy\, and options for genetic testing including preimplantation genetic testing (PGT). Bring your questions\, we’ll have time for discussion afterwards! \nRegister Here \n*Please note this Tuesday Takeaways session begins at 12:15PM\, 15 minutes later than usual \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/October-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241029T180000
DTEND;TZID=America/New_York:20241029T203000
DTSTAMP:20260404T122751
CREATED:20240724T193158Z
LAST-MODIFIED:20241030T001909Z
UID:2277-1730224800-1730233800@www.nfnortheast.org
SUMMARY:Hike for NF: Never Stop Climbing - Halloween Hike
DESCRIPTION:**This hike replaces the Harvest Super Moon Hike. The date was changed due to the threat of mosquito borne illness in the area.** \nWe’re bringing back Hike for NF: Never Stop Climbing for another year—but this time with a spooky twist! \nJoin us the evening of Tuesday\, October 29th for our third annual fundraising hike\, this time with a fun-filled Halloween theme. Hikers will experience the sounds and sights of Horn Pond in Woburn as the sun goes down\, using their heightened senses to connect with the nature around them. The hike is a flat\, 2-mile loop around the pond\, with an optional climb for a rewarding view of the Boston skyline at the end! Meet time is 6pm – the hike will begin promptly at 6:15pm. Costumes and festive Halloween attire are encouraged! After the hike\, head over to Lord Hobo Brewery in Woburn for a Halloween trivia session. \nRegistration:Adults – $30Children – $15 \nRegister \nThere is no minimum fundraising amount. However\, we are offering incentives\, should you wish to fundraise. All registration fees must be paid in advance to secure your spot to hike. \n\nFundraise $100 to select any NF merchandise\nFundraise $250 and you will receive a NF cooler or crossbody bag\nFundraise $500 and you will receive a bluetooth speaker and earbud kit\n\nContact info@nfnortheast.org or 781-272-9936 for more information! \nWhen life gives you mountains\, put on your boots and hike!
URL:https://www.nfnortheast.org/event/hike-for-nf-never-stop-climbing-halloween-hike/
LOCATION:Horn Pond\, 93 Lake Avenue\, Woburn\, 01801\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/Hike-Banner-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241105T120000
DTEND;TZID=America/New_York:20241105T130000
DTSTAMP:20260404T122751
CREATED:20241016T184432Z
LAST-MODIFIED:20241105T202511Z
UID:2392-1730808000-1730811600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #5 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our fifth session of our Fall 2024 series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you interested in learning helpful techniques that will improve how you advocate for yourself? Join us for an information session where Mike will share tips and strategies on how to advocate for yourself at home\, work\, medical appointments and more. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December. Find our other sessions on our event calendar: nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-5-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/November-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241109T180000
DTEND;TZID=America/New_York:20241109T230000
DTSTAMP:20260404T122751
CREATED:20240524T164510Z
LAST-MODIFIED:20241119T153220Z
UID:2116-1731175200-1731193200@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are so excited to announce the 15th Annual Committed to Curing NF Fundraiser will take place on Saturday\, November 9th 2024! \nPlease join the Malerba family at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who are unable to join on this special night\, try your luck in one of the drawings and/or make a tax-deductible donation to NF Northeast! \nEvent Tickets: \nEvent Tickets — $50 each \nReserve of Table of Ten — $500  \nPurchase Tickets \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nMystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \nVIP EXPERIENCE DRAWING – $35 per ticket \nWatch the World Champion Boston Celtics (2/23/25) OR the Boston Bruins (1/25/25) from a private luxury suite for 21 people on Level 6 of TD Garden. This VIP suite offers your group a private\, comfortable atmosphere with fantastic views of the on-court action. The included 1K in-suite catering makes this a day to remember!! \nWinning Package Includes: \n\n\n\n21 suite tickets to a private luxury suite near center ice on Level 6\n2 VIP parking passes on Level 1 of the TD Garden Garage\nFood & Beverage package included worth $1K\nAccess to private BGS entrances with dedicated elevators that bring you straight from the parking garage or street level to your suite level\nEarly access to the arena\, starting 2 hours prior to the game\nA private common area for mingling plus a private restroom\nA dedicated suite attendant for your food & beverage needs. Various options for food and beverage add-ons are available for purchase.\nAccess to Society Provisions and Society Harborview Lounge\n\n\n\nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nNF Champion Donor – $1\,500 Donation \n  \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their seventeen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $950\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-3/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241116T120000
DTEND;TZID=America/New_York:20241116T150000
DTSTAMP:20260404T122751
CREATED:20241030T190939Z
LAST-MODIFIED:20241119T153224Z
UID:2413-1731758400-1731769200@www.nfnortheast.org
SUMMARY:Kendra Scott Gives Back Event with NF Northeast
DESCRIPTION:Join us at Kendra Scott’s Give Back Event to check two things off your list this holiday season—shopping for gifts and supporting a great cause! We’ve partnered with Kendra Scott to throw a Kendra Gives Back event during which 20% of purchases made in-store during the hosted event or digitally through kendrascott.com (using a custom code) will directly benefit NF Northeast! \nWe’re hosting these events in-store throughout the northeast on Saturday\, November 16th from 12pm – 3pm at the following locations: \n\nLegacy Place\, Dedham\, MA\nMarket Street\, Lynnfield\, MA\nGarden State Shopping Mall\, Paramus\, NJ\nSuburban Square\, Ardmore\, PA\n\nOr online from Saturday\, November 16th through Monday\, November 18th using the code: GIVEBACK-HVQZD \nShop Online \nWe hope you can shop with us in-store or online to shine bright and do good this holiday season!
URL:https://www.nfnortheast.org/event/kendra-scott-gives-back-event-with-nf-northeast/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/Kendra-Scott-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T190000
DTEND;TZID=America/New_York:20241119T200000
DTSTAMP:20260404T122751
CREATED:20240821T174118Z
LAST-MODIFIED:20241120T021538Z
UID:2325-1732042800-1732046400@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, November 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-nov24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/November-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241207T180000
DTEND;TZID=America/New_York:20241207T200000
DTSTAMP:20260404T122751
CREATED:20241127T000250Z
LAST-MODIFIED:20241210T160832Z
UID:2439-1733594400-1733601600@www.nfnortheast.org
SUMMARY:NF Family and Community Night: Hartford CT Area
DESCRIPTION:Calling all those who live near Hartford\, CT! Join us the evening of Saturday\, December 7th at Cheshire Craft Brewing for drinks and appetizers in a relaxed\, casual setting with other NF locals! This is a great chance to connect with other patients and families in the area and meet others who understand life with neurofibromatosis. We hope to see you there! \nRSVP to Sara-Jane at sjgriffin@nfnortheast.org or 781-272-9936 by 12/4/2024
URL:https://www.nfnortheast.org/event/nf-family-and-community-night-hartford-ct-area/
LOCATION:Cheshire Craft Brewing\, 125 Commerce Ct STE 7\, Cheshire\, CT\, 06410\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/11/Hartford-Family-Night-WEB.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241210T120000
DTEND;TZID=America/New_York:20241210T130000
DTSTAMP:20260404T122751
CREATED:20241030T003359Z
LAST-MODIFIED:20241210T185440Z
UID:2408-1733832000-1733835600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #6 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin us for our final session of 2024 to learn useful tips for having better conversations with your healthcare providers and care team. Mike Sager\, Patient Education Manager at Alexion Pharmaceuticals\, will show you how to use a Conversation Planning Worksheet to prepare for these discussions. You’ll leave knowing how to set goals for your interactions and how to make each conversation more effective! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-6-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/December-WEB-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241212T190000
DTEND;TZID=America/New_York:20241212T200000
DTSTAMP:20260404T122751
CREATED:20240821T175803Z
LAST-MODIFIED:20241217T194406Z
UID:2329-1734030000-1734033600@www.nfnortheast.org
SUMMARY:NF Holiday Community Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Thursday\, December 12th at 7pm for a virtual holiday chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise\, especially around the holiday season. \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-dec24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/December-24-holiday.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250118T090000
DTEND;TZID=America/New_York:20250118T100000
DTSTAMP:20260404T122751
CREATED:20250108T003242Z
LAST-MODIFIED:20250122T193023Z
UID:2478-1737190800-1737194400@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, January 18th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-jan25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/January-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250128T120000
DTEND;TZID=America/New_York:20250128T130000
DTSTAMP:20260404T122751
CREATED:20241127T015409Z
LAST-MODIFIED:20250128T181131Z
UID:2450-1738065600-1738069200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Mary-Frances Garber
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nReceiving a new diagnosis of neurofibromatosis (NF) or schwannomatosis (SWN) or managing a complication from NF/SWN can result in a range of emotions for any patient or caregiver. Learning to step forward into this new territory and manage these feelings can be challenging. Acknowledging that these feelings are to be expected and can be managed is the first step to building a successful life. Mary-Frances Garber is an expert genetic counselor who will shed light on the various emotions/concerns that many NF families experience and teach strategies for navigating them. \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-maryfrances-garber/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/10/January-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250208T100000
DTEND;TZID=America/New_York:20250208T120000
DTSTAMP:20260404T122751
CREATED:20241210T200109Z
LAST-MODIFIED:20250211T163648Z
UID:2457-1739008800-1739016000@www.nfnortheast.org
SUMMARY:12th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 12th annual Cupid’s Chase 5K on Saturday\, February 8th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/18/2025 \nOnline registration ends on Thursday\, February 6th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from 4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \nRegistration by 2/6 at 12pm:  \nIndividuals – $40 \nDay of Registration: \nIndividuals – $45 \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-2025/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/12/WEB-Event-Page-Featured-Images.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250210T190000
DTEND;TZID=America/New_York:20250210T200000
DTSTAMP:20260404T122751
CREATED:20250108T003621Z
LAST-MODIFIED:20250211T163653Z
UID:2481-1739214000-1739217600@www.nfnortheast.org
SUMMARY:NF Community Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, February 10th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-feb25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/February-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250225T120000
DTEND;TZID=America/New_York:20250225T130000
DTSTAMP:20260404T122751
CREATED:20250218T163605Z
LAST-MODIFIED:20250225T173004Z
UID:2793-1740484800-1740488400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin us on Tuesday\, February 25th at 12pm as Mike Sager\, Patient Education Manager at Alexion Pharmaceuticals\, examines the triggers and symptoms of stress while living with NF. Managing neurofibromatosis (NF) can be complex\, and we will explore various stress management techniques geared toward promoting wellness! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-mike-sager/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/February-25-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T180000
DTEND;TZID=America/New_York:20250301T200000
DTSTAMP:20260404T122751
CREATED:20250225T110157Z
LAST-MODIFIED:20250304T190949Z
UID:2822-1740852000-1740859200@www.nfnortheast.org
SUMMARY:Hartford NF Meet Up
DESCRIPTION:Join NF Northeast for a free and fun Hartford NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Cheshire Craft Brewing! Food and drink will be available for purchase.  Bring the family – we hope to see you there! \nWhat: NF Northeast Hartford Family Night Meet Up \nWhen: Saturday\, March 1 @ 6PM \nWhere: Cheshire Craft Brewing – Cheshire\, CT \nQuestions?  Contact Sara-Jane Griffin.
URL:https://www.nfnortheast.org/event/hartford-nf-meet-up/
LOCATION:Cheshire Craft Brewing\, 125 Commerce Ct STE 7\, Cheshire\, CT\, 06410\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/HARTFORD.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250309T140000
DTEND;TZID=America/New_York:20250309T170000
DTSTAMP:20260404T122751
CREATED:20250224T180612Z
LAST-MODIFIED:20250311T152445Z
UID:2814-1741528800-1741539600@www.nfnortheast.org
SUMMARY:Western NY NF Meet Up
DESCRIPTION:Join NF Northeast for a WNY NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Resurgence Brewery in Buffalo\, NY! \nWhat: NF Northeast WNY Meet Up \nWhen: Sunday\, March 9 @ 2PM – 5PM \nWhere: Resurgence Brewery (55 Chicago Street\, Buffalo) \nQuestions?  Contact Anne Patterson
URL:https://www.nfnortheast.org/event/western-ny-nf-meet-up/
LOCATION:Resurgence Brewery\, 55 Chicago Street\, Buffalo\, NY\, 14204
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Buffalo-3.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T120000
DTEND;TZID=America/New_York:20250311T130000
DTSTAMP:20260404T122751
CREATED:20250129T202836Z
LAST-MODIFIED:20250311T164816Z
UID:2703-1741694400-1741698000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways with Dr. Frank Buono
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nAre you interested in learning more about managing chronic pain? Many individuals who live with neurofibromatosis (NF) also live with chronic pain. Dr. Frank Buono\, a Research Scientist and Lecturer at the Yale School of Medicine\, will shed light on the different aspects of pain and strategies to help individuals cope with the challenges of pain management. Join us to learn more about the ‘I Can Cope NF’ App\, alternative pain management strategies\, the importance of self-advocacy\, and much more! \nRegister Here \nPlease join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: www.nfnortheast.org/events
URL:https://www.nfnortheast.org/event/tuesday-takeaways-with-frank-buono/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/March-2025-WEB.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T190000
DTEND;TZID=America/New_York:20250311T200000
DTSTAMP:20260404T122751
CREATED:20250108T003926Z
LAST-MODIFIED:20250312T034725Z
UID:2484-1741719600-1741723200@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 11th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-march25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/March-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250322T140000
DTEND;TZID=America/New_York:20250322T170000
DTSTAMP:20260404T122751
CREATED:20250211T131951Z
LAST-MODIFIED:20250325T144152Z
UID:2763-1742652000-1742662800@www.nfnortheast.org
SUMMARY:NYC NF Meet Up
DESCRIPTION:Join NF Northeast for a NYC NF Meet Up! Meet other NF patients and connect over food\, drinks and fun at Clinton Hall on 51st Street. We hope to see you there! \nWhat: NF Northeast NYC Meet Up \nWhen: Saturday\, March 22 @ 2PM \nWhere: Clinton Hall (51st Street location) \nQuestions?  Contact Lauren Gilbert
URL:https://www.nfnortheast.org/event/nyc-nf-meet-up/
LOCATION:Clinton Hall\, 230 E. 51st St.\, New York\, NY\, 10022
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Greater-Boston-2-2.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250329T103000
DTEND;TZID=America/New_York:20250329T123000
DTSTAMP:20260404T122751
CREATED:20250130T030114Z
LAST-MODIFIED:20250402T173235Z
UID:2706-1743244200-1743251400@www.nfnortheast.org
SUMMARY:Support and Tools for NF1 Caregivers
DESCRIPTION:Join NF Northeast for an educational event designed to support and connect caregivers of individuals with neurofibromatosis type 1 (NF1). This seminar will provide valuable resources\, insights\, and a sense of community for those caring for loved ones with NF1. This workshop is designed for adult caregivers\, offering expert guidance and shared experiences to navigate the challenges of NF1 care. There will be a Q&A session where caregivers will have an opportunity to ask our speakers any questions they have. \nDate: Saturday\, March 29th\nTime: 10:30am – 12:30pm\nLocation: Katonah Village Library in Katonah\, NY (Westchester County) \nRegister Here \nSpeakers: \n\nGurcharanjeet Kaur\, MD – Pediatric Neurology\, Columbia University Irving Medical Center\nAmanda L. Bergner\, MS\, LCGC – Genetic Counseling\, Columbia University Irving Medical Center\nJeffrey Malone\, LMHC – Mental Health Counselor\n\nFor caregivers attending with children\, an onsite activity will be available for kids ages 6-11. \nAdvance registration is encouraged\, but walk-ins are welcome as space allows. \nThank you to our sponsor:
URL:https://www.nfnortheast.org/event/support-and-tools-for-nf1-caregivers/
LOCATION:Katonah Village Library\, 26 Bedford Rd\, Katonah\, NY\, 10536\, United States
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/NF1-Caregiver_WEB.png
ORGANIZER;CN="Allison D%E2%80%99Ottavio":MAILTO:adottavio@nfnortheast.org
END:VEVENT
END:VCALENDAR