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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20260404T102822
CREATED:20230905T151528Z
LAST-MODIFIED:20231017T191355Z
UID:1514-1697544000-1697547600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rebecca Brown
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our second session\, we’re excited to welcome Dr. Rebecca Brown—Assistant Professor in the Department of Neurology at Mount Sinai Hospital in NYC. She aims to address the following questions: Is it true that skin bumps (skin neurofibromas) in neurofibromatosis type 1 (NF1) start growing because of puberty? Does pregnancy cause more bumps to grow? What about hormonal birth control? Is it safe to take gender affirming hormones? These questions do not have easy or direct answers. Tune in to hear NF expert Dr. Brown dissect the evidence (or lack thereof) for how hormones affect tumors in NF1. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dr-rebecca-brown/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Oct.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231023T190000
DTEND;TZID=America/New_York:20231023T200000
DTSTAMP:20260404T102822
CREATED:20230823T191217Z
LAST-MODIFIED:20231024T192523Z
UID:1471-1698087600-1698091200@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, October 23rd at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-october-2/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/October-23-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231104T180000
DTEND;TZID=America/New_York:20231104T230000
DTSTAMP:20260404T102822
CREATED:20230719T234000Z
LAST-MODIFIED:20231116T164505Z
UID:1447-1699120800-1699138800@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are excited to announce that the 14th Annual Committed to Curing NF Fundraiser will take place on Saturday\, November 4th 2023! \nPlease join us at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who are unable to join us on this special night\, try your luck in one of our drawings and/or make a tax-deductible donation to NF Northeast! \n  \nDonate/Purchase Tickets \n  \nEvent Tickets: \nEvent Tickets — $50 each \nReserve of Table of Ten — $500  \n  \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nMystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \n$1\,000 Cash Prize Drawing – Enter to win $1\,000 in cash. $25 per ticket \n*All raffles will be available online starting now until November 3rd at 6pm and in-person at the event. Buy your raffles now or wait for the big night! \n  \nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their fifteen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $800\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-2/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231114T120000
DTEND;TZID=America/New_York:20231114T130000
DTSTAMP:20260404T102822
CREATED:20230905T171557Z
LAST-MODIFIED:20231116T164508Z
UID:1517-1699963200-1699966800@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Leah & Dasher Manth
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our third session\, we’re PAWS-itively thrilled to welcome Leah Manth\, MSW & Dasher Manth\, Service Dog Extraordinaire! Leah and Dasher will discuss the benefits that a service dog can provide for patients and families affected by neurofibromatosis. Have you wondered what type of assistance and comfort a service dog can provide? Or how someone might go about applying for one? What the difference is between service\, therapy\, and emotional support dogs? Leah will share her experience\, answer questions\, and much more! \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-leah-dasher-manth/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Nov.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231118T090000
DTEND;TZID=America/New_York:20231118T100000
DTSTAMP:20260404T102822
CREATED:20230823T191824Z
LAST-MODIFIED:20231129T171132Z
UID:1475-1700298000-1700301600@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, November 18th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-november-2/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/November-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231212T120000
DTEND;TZID=America/New_York:20231212T130000
DTSTAMP:20260404T102822
CREATED:20230905T172804Z
LAST-MODIFIED:20231213T013956Z
UID:1520-1702382400-1702386000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Dr. Jennifer Janusz
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our fourth and final session\, we’re welcoming Dr. Jennifer Janusz—Program Director\, Neurofibromatosis Program\, Colorado Children’s Hospital. Dr. Janusz will speak to the various ways family relationships can be affected by having a loved one with neurofibromatosis – from parents/partners to sibling relationships. \nRegister Here \nThank you to all who have tuned in for our Tuesday Takeaway series this fall—keep an eye out for another series in the spring!
URL:https://www.nfnortheast.org/event/tuesday-takeaway-session-4-with-dr-jennifer-janusz/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Dec.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231213T190000
DTEND;TZID=America/New_York:20231213T200000
DTSTAMP:20260404T102822
CREATED:20230823T193031Z
LAST-MODIFIED:20231220T201035Z
UID:1478-1702494000-1702497600@www.nfnortheast.org
SUMMARY:NF Community Holiday Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Wednesday\, December 13th at 7pm for a community-building virtual holiday chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-holiday-chat-december/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/December-23-holiday-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240118T180000
DTEND;TZID=America/New_York:20240118T200000
DTSTAMP:20260404T102822
CREATED:20231220T201006Z
LAST-MODIFIED:20240122T204009Z
UID:1644-1705600800-1705608000@www.nfnortheast.org
SUMMARY:Kids/Teens Game Night
DESCRIPTION:Join us on Thursday\, January 18th for a game night social geared towards kids/teens with NF and their siblings at Game Underground in Waltham\, MA! Includes exclusive access to the use of their four large screens\, Switch\, and Xbox. Also includes a $5 credit for arcade games. \nTo register email sjgriffin@nfnortheast.org. \n*Limited space available on a first come\, first serve basis*
URL:https://www.nfnortheast.org/event/kids-teens-game-night/
LOCATION:Game Underground\, 349 Moody St\, Waltham\, MA\, 02453\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/12/16.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240123T190000
DTEND;TZID=America/New_York:20240123T200000
DTSTAMP:20260404T102822
CREATED:20240109T191927Z
LAST-MODIFIED:20240130T232242Z
UID:1687-1706036400-1706040000@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, January 23rd at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-january24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/January-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240209T180000
DTEND;TZID=America/New_York:20240209T200000
DTSTAMP:20260404T102822
CREATED:20240117T225619Z
LAST-MODIFIED:20240227T151654Z
UID:1722-1707501600-1707508800@www.nfnortheast.org
SUMMARY:Youth Empowerment Workshop: Empowerment Through Media
DESCRIPTION:We’re so excited to offer a night of encouragement & empowerment for our NF community kids/teens! Emily Maher\, reporter with WCVB Channel 5\, will run the first Empowerment Through Media workshop geared towards those age 12 and up. \nBeing a kid/teen with NF is challenging! Does your NF kiddo ever feel anxious at school? Have a fear of failure? Or sometimes feel frustrated\, angry\, or defeated? \n\n\n\nJoin NF Northeast & Emily Maher from 6pm-8pm on Friday\, February 9th to learn some tips and tricks of the TV Reporter trade! Ms. Maher will share empowering ideas and strategies she’s learned while working in media for overcoming awkward situations\, facing your fears\, and feeling confident about being YOU! Plus\, receive your own Channel 5 reporter notebook! Pizza and soft drinks will be served. \n\n\n\nTo register or inquire further: Call 781-272-9936 or email sjgriffin@nfnortheast.org \n*Space is limited\, content is geared towards those age 12+*
URL:https://www.nfnortheast.org/event/kid-teen-empowerment-through-media-workshop/
LOCATION:Workbar Burlington\, 100 Summit Dr.\, Burlington\, MA\, 01803\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/KidTeen-Empowerment-Through-Media-WEB-Event.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240210T100000
DTEND;TZID=America/New_York:20240210T120000
DTSTAMP:20260404T102822
CREATED:20231213T013905Z
LAST-MODIFIED:20240213T205009Z
UID:1637-1707559200-1707566400@www.nfnortheast.org
SUMMARY:Cupid's Chase 5K
DESCRIPTION:Join us for the 11th annual Cupid’s Chase 5K on Saturday\, February 10th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay after the race for a post-celebration including beer and awards! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \nAll registrants are guaranteed a shirt if registered by 1/20/24\, as well as unlimited tickets (as long as supplies last) for a Samuel Adams at our post race celebration! If registered after 1/20/24 shirts are given out on a first come\, first serve basis after the race. \nThe award ceremony will take place around 11am in the bar area of the Lakeside Inn. Awards can not be given out until results are official. \nRegistration Fees \nRegistration by 2/7:  \nIndividuals – $35 \nCouples – $60 \nDay of Registration: \nIndividuals – $40 \nCouples – $70 \n*Couples can be any pair of two! Grab a running friend and sign up together for a discount! * \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-2/
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/Cupids-Chase-23.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240220T190000
DTEND;TZID=America/New_York:20240220T200000
DTSTAMP:20260404T102822
CREATED:20240109T192300Z
LAST-MODIFIED:20240221T211227Z
UID:1690-1708455600-1708459200@www.nfnortheast.org
SUMMARY:NF Community Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, February 20th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-february24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/February-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240227T120000
DTEND;TZID=America/New_York:20240227T130000
DTSTAMP:20260404T102822
CREATED:20240131T193110Z
LAST-MODIFIED:20240227T210815Z
UID:1753-1709035200-1709038800@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Jeffrey Malone
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the first session of our Spring 2024 Tuesday Takeaways series\, we welcome Licensed Mental Health Counselor Jeffrey Malone! Living with NF not only takes a physical toll on patients\, but it can also cause emotional distress for those impacted. Jeffrey Malone\, LMHC\, has a passion for increasing awareness of NF and decreasing the stigma of mental health. This session will focus on common mental health symptoms experienced by those living with NF\, including: depression\, low-self-esteem\, anxiety\, and effective methods of coping with these symptoms. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (February through May). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-jeffrey-malone/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/Feb-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240307T180000
DTEND;TZID=America/New_York:20240307T200000
DTSTAMP:20260404T102822
CREATED:20240227T155254Z
LAST-MODIFIED:20240312T143843Z
UID:1901-1709834400-1709841600@www.nfnortheast.org
SUMMARY:Youth Empowerment Workshop: Improv as a Confidence Builder
DESCRIPTION:We’re so excited to bring another Youth Empowerment Workshop to our NF community! \nHave you ever used improvisation as a tool for everyday challenges? Robyn Fatseas\, M.A. will be joining us to lead a confidence-boosting improv workshop meant to encourage creativity and courage in our NF youth. She uses improv techniques to help each child develop tools for dealing with tough social situations and use creative solutions for handling any bumps in the road kids may encounter in their daily lives. \nJoin Robyn on Thursday\, March 7th from 6pm – 8pm at Workbar Quincy in Quincy\, MA. This program is geared towards NF students in grades 4 through 7. \nTo register or inquire further: Call 781-272-9936 or email sjgriffin@nfnortheast.org \n*Registration ends Tuesday\, March 5th \nRobyn is a Complex Child Development Specialist who has pioneered techniques to help children navigate stress\, communication\, and confidence. She loves to engage with her  participants using real life examples and puts the crowd at ease with an innate sense of humor which allows the development of new thinking patterns skills for everyday social situations.
URL:https://www.nfnortheast.org/event/youth-empowerment-workshop-improv-as-a-confidence-builder/
LOCATION:Workbar Quincy\, 100 Hancock St 3rd Floor\, Quincy\, MA\, 02171\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/02/Empowerment-Improv-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240308T150000
DTEND;TZID=America/New_York:20240308T210000
DTSTAMP:20260404T102822
CREATED:20240109T200156Z
LAST-MODIFIED:20240312T143848Z
UID:1702-1709910000-1709931600@www.nfnortheast.org
SUMMARY:A Really Big Dill Fundraiser: Pickleball Fundraiser for NF Northeast
DESCRIPTION:NF Northeast is incredibly excited to announce our FIRST EVER pickleball fundraiser! Join us on Friday\, March 8th at the Wimbledon Tennis and Pickleball Club in Walpole\, MA for a rousing afternoon/evening of pickleball to benefit all those affected by neurofibromatosis. \nRegister Here \nRegistration Fees: \n$75 – One Player \n$100 – Team of Two \nSession #1:\nLesson: 3pm to 4pm\nOpen Play: 4pm to 5:30pm \nSession #2:\nLesson: 6pm to 7pm\nOpen Play: 7pm to 8:30pm \nEach session includes a small group lesson for an hour\, with the remaining time dedicated to open playing time! We are offering two different sessions—an afternoon session beginning at 3pm or an evening session beginning at 6pm. Day-of registration opens 30 minutes prior to the start of each session. \nPlease contact Sara-Jane Griffin at sjgriffin@nfnortheast.org with any questions. \n 
URL:https://www.nfnortheast.org/event/a-really-big-dill-fundraiser-pickleball-fundraiser-for-nf-northeast/
LOCATION:Wimbledon Tennis and Pickleball Club\, 20 County St\, Walpole\, MA\, 02081\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/Pickleball-WEB-Event.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240319T190000
DTEND;TZID=America/New_York:20240319T200000
DTSTAMP:20260404T102822
CREATED:20240109T192515Z
LAST-MODIFIED:20240320T005315Z
UID:1693-1710874800-1710878400@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-march24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/March-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240326T120000
DTEND;TZID=America/New_York:20240326T130000
DTSTAMP:20260404T102822
CREATED:20240131T193936Z
LAST-MODIFIED:20240328T180533Z
UID:1757-1711454400-1711458000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Gary Brenner
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our second session\, we’re welcoming Dr. Gary Brenner\, Director of the Pain Medicine Fellowship at Massachusetts General Hospital. Dr. Brenner runs an NIH-funded lab focused on developing gene therapy for the often painful peripheral nervous system tumors associated with neurofibromatosis/schwannomatosis. A significant portion of his research is dedicated to developing novel therapies for the treatment of schwannomas. Please join us to learn about the use of genetically modified Salmonella strains for treating schwannoma. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (February through May). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-gary-brenner/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/March-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240413T090000
DTEND;TZID=America/New_York:20240413T100000
DTSTAMP:20260404T102822
CREATED:20240109T192815Z
LAST-MODIFIED:20240416T183017Z
UID:1696-1712998800-1713002400@www.nfnortheast.org
SUMMARY:NF Community Coffee Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 13th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-april24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/April-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T120000
DTEND;TZID=America/New_York:20240430T130000
DTSTAMP:20260404T102822
CREATED:20240131T195228Z
LAST-MODIFIED:20240430T161646Z
UID:1760-1714478400-1714482000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Robyn Fatseas
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our third session\, we’re excited to welcome Robyn Fatseas\, M.A. and Complex Child Development Specialist\, to discuss creative solutions for initiating behavior change in your child. Behavior is a form of communication\, so how do caregivers effectively attend to their child and achieve desirable results for everyone? Robyn will be sharing her insight on approaching different scenarios with thoughtfulness and intentionality when behavior change is desired. Join us for this informative and interactive session! \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (February through May). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-robyn-fatseas/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/April-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240521T190000
DTEND;TZID=America/New_York:20240521T200000
DTSTAMP:20260404T102822
CREATED:20240109T193040Z
LAST-MODIFIED:20240524T164712Z
UID:1699-1716318000-1716321600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, May 21st at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-may24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/May-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240528T120000
DTEND;TZID=America/New_York:20240528T130000
DTSTAMP:20260404T102822
CREATED:20240131T201612Z
LAST-MODIFIED:20240528T192405Z
UID:1763-1716897600-1716901200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Anne Patterson & Sharon Klein
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor our fourth and final session of the Spring 2024 series\, two NF Northeast professionals—Anne Patterson\, Director of Patient and Clinic Outreach\, and Sharon Klein\, Executive Director—will host an information session on trusted NF clinics located in the northeast! We’re fortunate that here in the northeast there are many NF providers offering world class expert care to NF patients and their families. With May being NF Awareness Month\, we would like to take a moment to highlight the NF clinics in our northeast region and will welcome some special guest speakers to highlight their clinic/team. Join us for this informative session that will shed light on where to find compassionate and expert care for you or your loved one with neurofibromatosis. \nRegister Here \nThank you to all who have tuned in for our Tuesday Takeaway series this spring—keep an eye out for another series in the fall! \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-4-with-patterson-klein/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/01/May-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240715T080000
DTEND;TZID=America/New_York:20240715T130000
DTSTAMP:20260404T102822
CREATED:20240531T001839Z
LAST-MODIFIED:20240716T185845Z
UID:2133-1721030400-1721048400@www.nfnortheast.org
SUMMARY:Holes for Hope: A Round for NF Northeast
DESCRIPTION:Join us at Holes for Hope: A Round for NF Northeast\, a golf fundraiser and lunch hosted at the lovely Ferncroft Country Club in Middleton\, MA! Enjoy the beautiful course while supporting the mission of NF Northeast. \nRegister Now \n8AM – Shotgun Start \nLunch – Immediately following the round of golf \nEach golfer will receive a link to their personal fundraising page. Funds can be raised by asking family\, friends\, or co-workers for donations for each hole or a flat amount toward your minimum. Reach out to 781-272-9936 or info@nfnortheast.org to learn more about fundraising minimums or for help with registration. \n*All funds must be raised by Wednesday\, July 10th to participate. \n  \nThank you to our sponsor:
URL:https://www.nfnortheast.org/event/holes-for-hope-a-round-for-nf-northeast/
LOCATION:Ferncroft Country Club\, 10 Village Road\, Middleton\, MA\, 01949\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/05/Event-Page-Featured-Images-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240720T090000
DTEND;TZID=America/New_York:20240720T100000
DTSTAMP:20260404T102822
CREATED:20240530T213526Z
LAST-MODIFIED:20240723T145233Z
UID:2128-1721466000-1721469600@www.nfnortheast.org
SUMMARY:NF Summer Coffee Chat - July
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, July 20th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-coffee-chat-july/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/05/WEB_July-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240806T120000
DTEND;TZID=America/New_York:20240806T130000
DTSTAMP:20260404T102822
CREATED:20240704T013022Z
LAST-MODIFIED:20240821T140515Z
UID:2249-1722945600-1722949200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Mike Sager
DESCRIPTION:Tuesday Takeaways is our reoccurring multi-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nFor the first session of our Fall 2024 Tuesday Takeaways series\, we welcome Mike Sager\, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will be sharing helpful resources and strategies on how to support those we care for and discussing the importance of personal self-care along the way. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (August through December)
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-mike-sager/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/07/August-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240818
DTEND;VALUE=DATE:20240819
DTSTAMP:20260404T102822
CREATED:20240524T171642Z
LAST-MODIFIED:20240821T125438Z
UID:2120-1723939200-1724025599@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2024
DESCRIPTION:NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday\, August 18\, 2024. \nIn order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1000 fundraising minimum. Bib numbers are limited\, so act fast to claim your spot for this iconic race! \nFor more information and to register to run for NF Northeast please visit the 2024 ASICS Falmouth Road Race registration site. For more information on the race\, visit: https://falmouthroadrace.com/ \n 
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2024/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/05/Event-Page-Featured-Images.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T063000
DTEND;TZID=America/New_York:20240907T160000
DTSTAMP:20260404T102822
CREATED:20240418T004205Z
LAST-MODIFIED:20240910T155906Z
UID:2065-1725690600-1725724800@www.nfnortheast.org
SUMMARY:13th Annual Coast to the Cure
DESCRIPTION:NF Northeast is excited to announce our 13th Annual Coast to the Cure ride to benefit NF Northeast on Saturday\, September 7th\, 2024 at Stage Fort Park in Gloucester\, MA! \nRegistration Fee – $25  \nFundraising Minimum – $275 \nRegister or Donate Here \n*Online registration ends Thursday\, September 5th at 11:59pm. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. Day-of registration opens at 6:30am and staggered starts will begin at 7am (see below for details). Registration fee includes rest stops with food and drink along the course\, SAG wagon\, post-ride lunch by Amigos Locos food truck and entrance to the beer garden (must be over 21 years of age). \nRace Schedule:  \nRegistration – 6:30am \n66 Mile Ride start time – 7am \n40 Mile Ride start time – 8am \n24 Mile Ride start time – 9am \nLunch/Beer Tent – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site. Price: $25 per ticket. \nFor more information contact: Sara-Jane at sjgriffin@nfnortheast.org \n*The fundraising minimum of $275 is required of all riders before receiveing a Coast to the Cure NF Rider Packet \n  \nThank you to our sponsors: \n \n \n  \nSpecial thanks to our media sponsor: \n \n \n 
URL:https://www.nfnortheast.org/event/13th-annual-coast-to-the-cure/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/04/Coast2024.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240916T090000
DTEND;TZID=America/New_York:20240916T170000
DTSTAMP:20260404T102822
CREATED:20240605T125640Z
LAST-MODIFIED:20240917T152222Z
UID:2138-1726477200-1726506000@www.nfnortheast.org
SUMMARY:2024 Fall Golf Classic
DESCRIPTION:NF Northeast invites you to join us for our annual Fall Golf Classic on Monday\, September 16th at the Four Oaks Country Club in Dracut\, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast\, cart/greens fees\, and an early dinner accompanied by awards\, raffles\, and a silent auction. \nGolfer Registration \n\n\n\n\n$175 – Individual \n$700 – Foursome \nRegister Here \nPlay will be in foursomes. Singles are welcome! Registration is on a first-come\, first-served basis. \n*Golf packages include cart\, greens fees\, continental breakfast\, giveaway\, and supper following golf.  \n\n  \n  \n  \nThank you to our sponsor: \n \n 
URL:https://www.nfnortheast.org/event/2024-fall-golf-classic/
LOCATION:Four Oaks Country Club\, 1 Clubhouse Ln\, Dracut\, MA\, 01826\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/2024-Fall-Golf-Classic.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240916T190000
DTEND;TZID=America/New_York:20240916T200000
DTSTAMP:20260404T102822
CREATED:20240821T124822Z
LAST-MODIFIED:20240917T152227Z
UID:2294-1726513200-1726516800@www.nfnortheast.org
SUMMARY:Young Adult Empowerment Series - Session #1
DESCRIPTION:Join us for our first of three sessions in our Young Adult Empowerment Series. This session will focus on social anxiety and tools you can use when connecting with other young adults. Jeffrey Malone\, MS\, LMHC and Anne Patterson\, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions. \nRegister Now \nThis youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.
URL:https://www.nfnortheast.org/event/young-adult-empowerment-series-session-1/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/Session1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T120000
DTEND;TZID=America/New_York:20240917T130000
DTSTAMP:20260404T102822
CREATED:20240821T152012Z
LAST-MODIFIED:20240917T175518Z
UID:2318-1726574400-1726578000@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rukin Gold and Dr. SantaCruz
DESCRIPTION:Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. \nJoin our second session to meet Dr. Rukin Gold\, NF Specialist and Child Neurologist\, and Dr. SantaCruz\, Pediatric Hematologist and Oncologist\, from Dartmouth Hitchcock Medical Center’s NF Clinic. They will be speaking about NF and discussing new resources and opportunities for patients living in the New England/New Hampshire area. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays\, August through December.
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dartmouth-hitchcock/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/September-2024.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T190000
DTEND;TZID=America/New_York:20240917T200000
DTSTAMP:20260404T102822
CREATED:20240821T173849Z
LAST-MODIFIED:20240917T231229Z
UID:2322-1726599600-1726603200@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, September 17th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-sept24/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/08/September-24.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
END:VCALENDAR