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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20261207T190000
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UID:4664-1796670000-1796675400@www.nfnortheast.org
SUMMARY:Navigating Sibling and Family Relationships While Living with NF1
DESCRIPTION:Navigating family relationships while living with a rare condition such as NF1 can present unique challenges and opportunities for connection. \nJoin NF Northeast on Monday\, December 7\, 2026\, for an educational session presented by Kristen Clark\, Patient Education Manager at Alexion Pharmaceuticals. \nThis session will explore ways to balance time and emotional support within families\, create shared activities that strengthen relationships\, and help teens and adults build meaningful connections that encourage social inclusion. \nThe evening will conclude with an engaging patient-led discussion. \nEvent Details \nDate: Monday\, December 7\, 2026\nTime: 7:00–8:30 PM\nPresenter: Kristen Clark\, Patient Education Manager\, Alexion Pharmaceuticals \nJoin us for an informative conversation about strengthening family connections and supporting one another while navigating life with NF1. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/navigating-sibling-and-family-relationships-while-living-with-nf1/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Sib-and-Fam-Graphic.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20261215T190000
DTEND;TZID=America/New_York:20261215T200000
DTSTAMP:20261023T215958Z
CREATED:20260410T143607Z
LAST-MODIFIED:20261023T215958Z
UID:4616-1797361200-1797364800@www.nfnortheast.org
SUMMARY:NF Holiday Chat - December
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Monday\, December 15th at 7:00 PM for our special NF Holiday Chat! Come celebrate the season with others who understand the NF journey — share stories\, connect with the community\, and enjoy some holiday cheer together. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-holiday-chat-december/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Copy-of-NFNE-Community-Chat-FB-Event-Banners-1200-×-628-px-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20270213T100000
DTEND;TZID=America/New_York:20270213T120000
DTSTAMP:20261028T190808Z
CREATED:20261028T190808Z
LAST-MODIFIED:20261028T190808Z
UID:4672-1802512800-1802520000@www.nfnortheast.org
SUMMARY:14th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 14th annual Cupid’s Chase 5K on Saturday\, February 13th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/20/2027 \nOnline registration ends on Thursday\, February 11th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from  4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \n\nEarly Bird (through 12/31) – $30\nStandard (1/1-2/7) – $35\nLate (2/8-2/12) – $40\nRace Day – $45\n\nNo Shirt Option:  Save $5 \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-3/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
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ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20261028T193507Z
CREATED:20261028T193313Z
LAST-MODIFIED:20261028T193507Z
UID:4675-1808611200-1808697599@www.nfnortheast.org
SUMMARY:Etape Loch Ness 2027 Cycling Event
DESCRIPTION:Ride the Scottish Highlands for NF Northeast!\nTake on an unforgettable cycling adventure at the Etape Loch Ness on Sunday\, April 25\, 2027! \nThis popular cycling event takes riders on a spectacular journey through the Scottish Highlands\, featuring breathtaking scenery around Loch Ness. Whether you’re an experienced cyclist or looking for your next big challenge\, this is an opportunity to combine an incredible riding experience with a meaningful cause. \nEvent Details\n\nEvent: Etape Loch Ness\nDate: Sunday\, April 25\, 2027\nLocation: Loch Ness and the Scottish Highlands\, Scotland\nFundraising Minimum: $750 per charity cyclist\nCharity Entries: Limited availability through NF Northeast\n\nThe event is sold out to general participants\, but NF Northeast has charity entries available! \nReady to Take on the Challenge?\nSecure your charity entry and turn your cycling adventure into an opportunity to make a difference.  Contact ktrainor@nfnortheast.org for more information.
URL:https://www.nfnortheast.org/event/etape-loch-ness-2027/
LOCATION:Bught Park\, Inverness\, Scotland\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/10/Etape-Loch-Ness-4.jpg
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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