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X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20261113T180000
DTEND;TZID=America/New_York:20261113T220000
DTSTAMP:20261009T171617Z
CREATED:20260423T160759Z
LAST-MODIFIED:20261009T171617Z
UID:4652-1794592800-1794607200@www.nfnortheast.org
SUMMARY:Committed to Curing NF Celebrates 17 Years! Join Us November 13
DESCRIPTION:Join the Malerba Family on Friday\, November 13\, 2026\, at The Great American Beer Hall in Medford\, MA\, as they celebrate 17 years of Committed to Curing NF! \nThis special evening will bring together family\, friends\, and supporters for light appetizers\, raffles\, prizes\, and an opportunity to support NF Northeast’s mission. \nAdmission is free\, and everyone is welcome to attend! \nEvent Details \nDate: Friday\, November 13\, 2026\nLocation: The Great American Beer Hall\, Medford\, MA\nAdmission: Free \nRaffles and Prizes \nSupport the cause and enter for a chance to win! \n\n50/50 Drawing ($25): Win half the raffle pot\, with the other half benefiting NF Northeast.\nScratch Ticket Tree ($25): A chance to win $300 worth of scratch tickets.\nGolf Foursome ($25): A round of golf with a cart at Hickory Hill Golf Course in Methuen\, MA.\n\nOnline raffle sales close Thursday\, November 12\, at 6:00 PM. Tickets will also be available for purchase at the event. \nSupport the Mission \nCan’t attend? You can still make a difference! Donations are welcome at any amount\, with special recognition available through donor levels ranging from $100 to $1\,500. \nDonations and raffle purchases can also be made by check or Venmo (@NF-NORTHEAST). Please indicate your donation level or raffle selection in the payment memo. \nRegister\, Donate\, or Purchase Raffle Tickets \nHelp celebrate 17 years of raising awareness\, supporting families\, and working toward a cure for NF! \nREGISTER\, DONATE & PURCHASE RAFFLE TICKETS \n17 Years. One Mission. One Goal: Cure NF!
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-celebrates-17-years-join-us-november-13/
LOCATION:Great American Beer Hall\, 142 Mystic Avenue\, Medford\, MA\, 02155\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Final-CCNF26-flyer.png
ORGANIZER;CN="Melissa Malerba":MAILTO:melissamalerba2028@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261114T090000
DTEND;TZID=America/New_York:20261114T143000
DTSTAMP:20261030T105929Z
CREATED:20260423T154634Z
LAST-MODIFIED:20261030T105929Z
UID:4645-1794646800-1794666600@www.nfnortheast.org
SUMMARY:Living Forward with NF – A community-focused symposium
DESCRIPTION:Ask the experts. Meet your community. Get hands-on. Living Forward with NF is a community-focused symposium hosted by NF Northeast in Albany on November 14 where NF1 and NF2 families talk with doctors outside the clinic\, share roundtable conversations\, and explore a hands-on Patient Learning Lab with therapy dogs\, music therapy\, and more.   \n_________________________________________________________________________________________ \nPROGRAM HIGHLIGHTS \nPatient Learning Lab featuring therapy dogs\, music therapy\, Double H Ranch\, and more!  \nAsk the experts featuring NF specialists from Albany Medical Center\, Dartmouth-Hitchcock Medical Center\, Columbia University Medical Center\, and Yale School of Medicine.  \nRoundtable discussions where you can visit the tables that matter most to you and talk directly with our specialists in a relaxed setting about cognitive and behavioral challenges\, medical and genetic concerns\, hearing loss communication strategies\, coping with anxiety and depression\, and navigating college and employment.  \nConnect with the NF Community.  Living with NF means a lot of questions\, and not many places to ask them. On Saturday\, November 14\, NF Northeast is bringing the answers\, and the community\, to you.  \n_________________________________________________________________________________________ \nEVENT DETAILS \nCost: Free – Includes breakfast and lunch \n(Limited travel stipends also available; applications welcomed and encouraged. Email Anne Patterson apatterson@nfnortheast.org)  \nDate: Saturday\, November 14\, 2026\nTime: 9:00 AM – 2:30 PM\nLocation: Hilton Garden Inn\, Albany Medical Center \nWho: NF1 and NF2 patients\, caregivers\, and family members  \nPlease note: This program is intended for ages 14 and older.  \nREGISTER HERE \n  \nGenerously sponsored by \n 
URL:https://www.nfnortheast.org/event/registration-now-open-living-forward-with-nf-mini-symposium-november-14-2026/
LOCATION:Hilton Garden Inn\, Albany Medical Center USS Albany Ballroom\, 62 New Scotland Avenue\, Albany\, NY\, 12208\, United States
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/Website-header-2.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T190000
DTEND;TZID=America/New_York:20261119T203000
DTSTAMP:20261023T215808Z
CREATED:20260420T213516Z
LAST-MODIFIED:20261023T215808Z
UID:4660-1795114800-1795120200@www.nfnortheast.org
SUMMARY:Navigating Stress and Cultivating Wellness During the Holidays
DESCRIPTION:The holiday season can bring additional stress\, especially for individuals and families navigating life with a rare condition such as NF1. \nJoin NF Northeast on Thursday\, November 19\, 2026\, for an educational session presented by Kristen Clark\, Patient Education Manager at Alexion Pharmaceuticals. \nThis session will explore the impact of stress\, practical strategies for managing it\, healthy habits that support overall wellness\, and ways to seek additional support. The evening will conclude with an engaging patient-led discussion. \nEvent Details \nDate: Thursday\, November 19\, 2026\nTime: 7:00–8:30 PM\nPresenter: Kristen Clark\, Patient Education Manager\, Alexion Pharmaceuticals \nJoin us for an opportunity to learn practical wellness strategies and connect with others in the NF community. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/navigating-stress-and-cultivating-wellness-during-the-holidays/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Nav-Stress-Graphic.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261121T090000
DTEND;TZID=America/New_York:20261121T100000
DTSTAMP:20261030T130501Z
CREATED:20260418T175140Z
LAST-MODIFIED:20261030T130501Z
UID:4613-1795251600-1795255200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - November
DESCRIPTION:NF patients and their families and friends are invited to join us on the morning of Saturday\, November 21st at 9:00 AM for a community-building virtual coffee chat! These chats are a wonderful opportunity to connect with others who understand the NF journey and have open\, casual conversations about whatever is on your mind. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-november/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/New-coffee-chat-nov.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T190000
DTEND;TZID=America/New_York:20261207T203000
DTSTAMP:20261023T215704Z
CREATED:20260416T215144Z
LAST-MODIFIED:20261023T215704Z
UID:4664-1796670000-1796675400@www.nfnortheast.org
SUMMARY:Navigating Sibling and Family Relationships While Living with NF1
DESCRIPTION:Navigating family relationships while living with a rare condition such as NF1 can present unique challenges and opportunities for connection. \nJoin NF Northeast on Monday\, December 7\, 2026\, for an educational session presented by Kristen Clark\, Patient Education Manager at Alexion Pharmaceuticals. \nThis session will explore ways to balance time and emotional support within families\, create shared activities that strengthen relationships\, and help teens and adults build meaningful connections that encourage social inclusion. \nThe evening will conclude with an engaging patient-led discussion. \nEvent Details \nDate: Monday\, December 7\, 2026\nTime: 7:00–8:30 PM\nPresenter: Kristen Clark\, Patient Education Manager\, Alexion Pharmaceuticals \nJoin us for an informative conversation about strengthening family connections and supporting one another while navigating life with NF1. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/navigating-sibling-and-family-relationships-while-living-with-nf1/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/10/Sib-and-Fam-Graphic.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261215T190000
DTEND;TZID=America/New_York:20261215T200000
DTSTAMP:20261023T215958Z
CREATED:20260410T143607Z
LAST-MODIFIED:20261023T215958Z
UID:4616-1797361200-1797364800@www.nfnortheast.org
SUMMARY:NF Holiday Chat - December
DESCRIPTION:NF patients and their families and friends are invited to join us the evening of Monday\, December 15th at 7:00 PM for our special NF Holiday Chat! Come celebrate the season with others who understand the NF journey — share stories\, connect with the community\, and enjoy some holiday cheer together. We hope you can join us! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-holiday-chat-december/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/08/Copy-of-NFNE-Community-Chat-FB-Event-Banners-1200-×-628-px-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270213T100000
DTEND;TZID=America/New_York:20270213T120000
DTSTAMP:20261028T190808Z
CREATED:20261028T190808Z
LAST-MODIFIED:20261028T190808Z
UID:4672-1802512800-1802520000@www.nfnortheast.org
SUMMARY:14th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 14th annual Cupid’s Chase 5K on Saturday\, February 13th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/20/2027 \nOnline registration ends on Thursday\, February 11th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from  4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \n\nEarly Bird (through 12/31) – $30\nStandard (1/1-2/7) – $35\nLate (2/8-2/12) – $40\nRace Day – $45\n\nNo Shirt Option:  Save $5 \nCourse Map
URL:https://www.nfnortheast.org/event/cupids-chase-5k-3/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/12/WEB-Event-Page-Featured-Images.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20261028T193507Z
CREATED:20261028T193313Z
LAST-MODIFIED:20261028T193507Z
UID:4675-1808611200-1808697599@www.nfnortheast.org
SUMMARY:Etape Loch Ness 2027 Cycling Event
DESCRIPTION:Ride the Scottish Highlands for NF Northeast!\nTake on an unforgettable cycling adventure at the Etape Loch Ness on Sunday\, April 25\, 2027! \nThis popular cycling event takes riders on a spectacular journey through the Scottish Highlands\, featuring breathtaking scenery around Loch Ness. Whether you’re an experienced cyclist or looking for your next big challenge\, this is an opportunity to combine an incredible riding experience with a meaningful cause. \nEvent Details\n\nEvent: Etape Loch Ness\nDate: Sunday\, April 25\, 2027\nLocation: Loch Ness and the Scottish Highlands\, Scotland\nFundraising Minimum: $750 per charity cyclist\nCharity Entries: Limited availability through NF Northeast\n\nThe event is sold out to general participants\, but NF Northeast has charity entries available! \nReady to Take on the Challenge?\nSecure your charity entry and turn your cycling adventure into an opportunity to make a difference.  Contact ktrainor@nfnortheast.org for more information.
URL:https://www.nfnortheast.org/event/etape-loch-ness-2027/
LOCATION:Bught Park\, Inverness\, Scotland\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/10/Etape-Loch-Ness-4.jpg
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
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