Youth Empowerment Workshop: Improv as a Confidence Builder
2024-03-07 18:00 - 20:00 (America/New_York) | Workbar Quincy, 100 Hancock St 3rd Floor, Quincy, MA, 02171, United States
We’re so excited to bring another Youth Empowerment Workshop to our NF community!
Have you ever used improvisation as a tool for everyday challenges? Robyn Fatseas, M.A. will be joining us to lead a confidence-boosting improv workshop meant to encourage creativity and courage in our NF youth. She uses improv techniques to help each child develop tools for dealing with tough social situations and use creative solutions for handling any bumps in the road kids may encounter in their daily lives.
Join Robyn on Thursday, March 7th from 6pm – 8pm at Workbar Quincy in Quincy, MA. This program is geared towards NF students in grades 4 through 7.
To register or inquire further: Call 781-272-9936 or email sjgriffin@nfnortheast.org
*Registration ends Tuesday, March 5th
Robyn is a Complex Child Development Specialist who has pioneered techniques to help children navigate stress, communication, and confidence. She loves to engage with her participants using real life examples and puts the crowd at ease with an innate sense of humor which allows the development of new thinking patterns skills for everyday social situations.

A Really Big Dill Fundraiser: Pickleball Fundraiser for NF Northeast
2024-03-08 15:00 - 21:00 | Wimbledon Tennis and Pickleball Club, 20 County St, Walpole, MA, 02081, United States
NF Northeast is incredibly excited to announce our FIRST EVER pickleball fundraiser! Join us on Friday, March 8th at the Wimbledon Tennis and Pickleball Club in Walpole, MA for a rousing afternoon/evening of pickleball to benefit all those affected by neurofibromatosis.
Register Here
Registration Fees:
$75 – One Player
$100 – Team of Two
Session #1:
Lesson: 3pm to 4pm
Open Play: 4pm to 5:30pm
Session #2:
Lesson: 6pm to 7pm
Open Play: 7pm to 8:30pm
Each session includes a small group lesson for an hour, with the remaining time dedicated to open playing time! We are offering two different sessions—an afternoon session beginning at 3pm or an evening session beginning at 6pm. Day-of registration opens 30 minutes prior to the start of each session.
Please contact Sara-Jane Griffin at sjgriffin@nfnortheast.org with any questions.

NF Community Chat - March
2024-03-19 19:00 - 20:00 | Zoom
NF patients and their families/friends are invited to join us the evening of Tuesday, March 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats!
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

Tuesday Takeaways Session #2 with Dr. Gary Brenner
2024-03-26 12:00 - 13:00 | Zoom
Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For our second session, we’re welcoming Dr. Gary Brenner, Director of the Pain Medicine Fellowship at Massachusetts General Hospital. Dr. Brenner runs an NIH-funded lab focused on developing gene therapy for the often painful peripheral nervous system tumors associated with neurofibromatosis/schwannomatosis. A significant portion of his research is dedicated to developing novel therapies for the treatment of schwannomas. Please join us to learn about the use of genetically modified Salmonella strains for treating schwannoma.
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (February through May).
Find more information about our other sessions HERE!

NF Community Coffee Chat - April
2024-04-13 09:00 - 10:00 | Zoom
NF patients and their families/friends are invited to join us the morning of Saturday, April 13th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats!
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

Tuesday Takeaways Session #3 with Robyn Fatseas
2024-04-30 12:00 - 13:00 | Zoom
Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For our third session, we’re excited to welcome Robyn Fatseas, M.A. and Complex Child Development Specialist, to discuss creative solutions for initiating behavior change in your child. Behavior is a form of communication, so how do caregivers effectively attend to their child and achieve desirable results for everyone? Robyn will be sharing her insight on approaching different scenarios with thoughtfulness and intentionality when behavior change is desired. Join us for this informative and interactive session!
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (February through May).
Find more information about our other sessions HERE!

NF Community Chat - May
2024-05-21 19:00 - 20:00 | Zoom
NF patients and their families/friends are invited to join us the evening of Tuesday, May 21st at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats!
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

Tuesday Takeaways Session #4 with Anne Patterson & Sharon Klein
2024-05-28 12:00 - 13:00 | Zoom
Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For our fourth and final session of the Spring 2024 series, two NF Northeast professionals—Anne Patterson, Director of Patient and Clinic Outreach, and Sharon Klein, Executive Director—will host an information session on trusted NF clinics located in the northeast! We’re fortunate that here in the northeast there are many NF providers offering world class expert care to NF patients and their families. With May being NF Awareness Month, we would like to take a moment to highlight the NF clinics in our northeast region and will welcome some special guest speakers to highlight their clinic/team. Join us for this informative session that will shed light on where to find compassionate and expert care for you or your loved one with neurofibromatosis.
Register Here
Thank you to all who have tuned in for our Tuesday Takeaway series this spring—keep an eye out for another series in the fall!
Find more information about our other sessions HERE!

Holes for Hope: A Round for NF Northeast
2024-07-15 08:00 - 13:00 | Ferncroft Country Club, 10 Village Road, Middleton, MA, 01949, United States
Join us at Holes for Hope: A Round for NF Northeast, a golf fundraiser and lunch hosted at the lovely Ferncroft Country Club in Middleton, MA! Enjoy the beautiful course while supporting the mission of NF Northeast.
Register Now
8AM – Shotgun Start
Lunch – Immediately following the round of golf
Each golfer will receive a link to their personal fundraising page. Funds can be raised by asking family, friends, or co-workers for donations for each hole or a flat amount toward your minimum. Reach out to 781-272-9936 or info@nfnortheast.org to learn more about fundraising minimums or for help with registration.
*All funds must be raised by Wednesday, July 10th to participate.

Thank you to our sponsor:

NF Summer Coffee Chat - July
2024-07-20 09:00 - 10:00 | Zoom
NF patients and their families/friends are invited to join us the morning of Saturday, July 20th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise.
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

Tuesday Takeaways Session #1 with Mike Sager
2024-08-06 12:00 - 13:00 | Zoom
Tuesday Takeaways is our reoccurring multi-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For the first session of our Fall 2024 Tuesday Takeaways series, we welcome Mike Sager, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will be sharing helpful resources and strategies on how to support those we care for and discussing the importance of personal self-care along the way.
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (August through December)

ASICS Falmouth Road Race 2024
2024-08-18 | Woods Hole, MA, Woods Hole, MA
NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday, August 18, 2024.
In order to run with NF Northeast in the ASICS Falmouth Road Race there is a $1000 fundraising minimum. Bib numbers are limited, so act fast to claim your spot for this iconic race!
For more information and to register to run for NF Northeast please visit the 2024 ASICS Falmouth Road Race registration site. For more information on the race, visit: https://falmouthroadrace.com/

13th Annual Coast to the Cure
2024-09-07 06:30 - 16:00 | Stage Fort Park in Gloucester, MA, 24 Hough Ave, Gloucester, MA, 01930, United States
NF Northeast is excited to announce our 13th Annual Coast to the Cure ride to benefit NF Northeast on Saturday, September 7th, 2024 at Stage Fort Park in Gloucester, MA!
Registration Fee – $25
Fundraising Minimum – $275
Register or Donate Here
*Online registration ends Thursday, September 5th at 11:59pm.
The ride starts and ends at Stage Fort Park in Gloucester, MA and accommodates all cycling levels. Participants will have the option to choose from 24, 40, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views, scenic horse and farm country, state forests, classic New England churches, and picturesque coastal towns. Day-of registration opens at 6:30am and staggered starts will begin at 7am (see below for details). Registration fee includes rest stops with food and drink along the course, SAG wagon, post-ride lunch by Amigos Locos food truck and entrance to the beer garden (must be over 21 years of age).
Race Schedule:
Registration – 6:30am
66 Mile Ride start time – 7am
40 Mile Ride start time – 8am
24 Mile Ride start time – 9am
Lunch/Beer Tent – 11:30am to 3pm
Lunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site. Price: $25 per ticket.
For more information contact: Sara-Jane at sjgriffin@nfnortheast.org
*The fundraising minimum of $275 is required of all riders before receiveing a Coast to the Cure NF Rider Packet

Thank you to our sponsors:

Special thanks to our media sponsor:

2024 Fall Golf Classic
2024-09-16 09:00 - 17:00 | Four Oaks Country Club, 1 Clubhouse Ln, Dracut, MA, 01826, United States
NF Northeast invites you to join us for our annual Fall Golf Classic on Monday, September 16th at the Four Oaks Country Club in Dracut, MA. Join us for a lovely day on the links! This relaxing day of golf includes a light breakfast, cart/greens fees, and an early dinner accompanied by awards, raffles, and a silent auction.
Golfer Registration

$175 – Individual
$700 – Foursome
Register Here
Play will be in foursomes. Singles are welcome! Registration is on a first-come, first-served basis.
*Golf packages include cart, greens fees, continental breakfast, giveaway, and supper following golf.

Thank you to our sponsor:

Young Adult Empowerment Series - Session #1
2024-09-16 19:00 - 20:00 | Zoom
Join us for our first of three sessions in our Young Adult Empowerment Series. This session will focus on social anxiety and tools you can use when connecting with other young adults. Jeffrey Malone, MS, LMHC and Anne Patterson, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions.
Register Now
This youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.

Tuesday Takeaways Session #2 with Dr. Rukin Gold and Dr. SantaCruz
2024-09-17 12:00 - 13:00 | Zoom
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
Join our second session to meet Dr. Rukin Gold, NF Specialist and Child Neurologist, and Dr. SantaCruz, Pediatric Hematologist and Oncologist, from Dartmouth Hitchcock Medical Center’s NF Clinic. They will be speaking about NF and discussing new resources and opportunities for patients living in the New England/New Hampshire area.
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays, August through December.

NF Community Chat - September
2024-09-17 19:00 - 20:00 | Zoom
NF patients and their families/friends are invited to join us the evening of Tuesday, September 17th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats!
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

Young Adult Empowerment Series - Session #2
2024-09-30 19:00 - 20:00 | Zoom
Join us for our second Young Adult Empowerment session focusing on how to be your own best advocate as you transition to adulthood – medically, socially and in work/education settings. Jeffrey Malone, MS, LMHC and Anne Patterson, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the session.
Register Now
This youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.

Tuesday Takeaways Session #3 with Mike Sager
2024-10-08 12:00 - 13:00 | Zoom
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For the third session of our Fall 2024 Tuesday Takeaways series, we welcome Mike Sager, Patient Education Manager with Alexion Pharmaceuticals! Are you a parent or caregiver for a child/loved one with neurofibromatosis? Mike will share helpful resources and strategies to use when advocating for those we care for while engaging with their medical team and beyond.
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays, August through December.

NF Charla de Café - Octubre
2024-10-12 09:00 - 10:00 | Zoom
¡Únase a nosotros en este chat comunitario para hispanohablantes realizado completamente en español!
¡Los pacientes de NF y sus familiares están invitados a unirse a nosotros el sábado 12 de octubre por la mañana a las 9 a.m. para una charla de café virtual en español para crear comunidad! Estos chats son oportunidades fantásticas para conocer a otras personas afectadas por NF y tener conversaciones informales sobre las preocupaciones y preguntas del díaa día que puedan surgir. ¡Esperamos que puedas unirte a nosotros!
Regístrate Aquí
*Después de registrarse, recibirá un correo electrónico de confirmación con información sobre cómo unirse a la reunión

2024 Amica Newport Marathon
2024-10-13 07:30 - 13:00 | Easton’s Beach, 175 Memorial Blvd, Newport, RI, 02840, United States
We’re so excited to offer a limited number of bibs for the 2024 Amica Newport Marathon in Newport, Rhode Island! Join us on Sunday, October 13th for a lovely fall running event on the northeast shoreline. Our bib offerings include the full marathon, the half marathon, OR virtual participation in either event—with a fundraising minimum of $500, which includes your race registration fee! You’ll also have the chance to design your own personalized fundraising page to help motivate donors!
Register Here
*Use above link to sign up with Team NF Northeast for no registration fee. Once registered, a NF Northeast staff member will reach out with further instruction on setting up your fundraising page.
NF Northeast offers coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races, and would love to help others prepare to run the Newport Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals, and Beth is available to assist with any and all questions about race running, nutrition, fundraising, and more!
Bib numbers are extremely limited, so act fast to claim your spot for this annual fall classic race! Half and full marathon are USATF-certified.

Young Adult Empowerment Series - Session #3
2024-10-14 19:00 - 20:00 | Zoom
Please join us for our third and final session of our fall Young Adult Empowerment series. The focus will be identifying hurdles of living with a chronic medical condition and establishing tools to help you achieve your goals. Jeffrey Malone, MS, LMHC and Anne Patterson, Director of Patient and Clinic Outreach at NF Northeast will be facilitating the sessions.

Register Now
This youth-oriented empowerment series is designed to guide and support young adults in the neurofibromatosis community. The sessions are designed to tackle the challenges associated with chronic illness and young adulthood by fostering peer discussions and providing resources & support. Make sure to check out the other sessions in our Young Adult Empowerment Series.

Tuesday Takeaways Session #4 with Amanda Bergner
2024-10-15 12:15 - 13:15 | Zoom
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For the fourth session of our Fall 2024 Tuesday Takeaways series, we welcome NF/SWN expert and genetic counselor, Amanda Bergner, to talk about various aspects of family planning across the lifespan for people with NF or schwannomatosis and their loved ones. Amanda will provide an overview of recent literature on topics such as birth control, dating and disclosure to others, considerations in pregnancy, and options for genetic testing including preimplantation genetic testing (PGT). Bring your questions, we’ll have time for discussion afterwards!
Register Here
*Please note this Tuesday Takeaways session begins at 12:15PM, 15 minutes later than usual
Please join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays, August through December.

Hike for NF: Never Stop Climbing - Halloween Hike
2024-10-29 18:00 - 20:30 | Horn Pond, 93 Lake Avenue, Woburn, 01801, United States
**This hike replaces the Harvest Super Moon Hike. The date was changed due to the threat of mosquito borne illness in the area.**
We’re bringing back Hike for NF: Never Stop Climbing for another year—but this time with a spooky twist!
Join us the evening of Tuesday, October 29th for our third annual fundraising hike, this time with a fun-filled Halloween theme. Hikers will experience the sounds and sights of Horn Pond in Woburn as the sun goes down, using their heightened senses to connect with the nature around them. The hike is a flat, 2-mile loop around the pond, with an optional climb for a rewarding view of the Boston skyline at the end! Meet time is 6pm – the hike will begin promptly at 6:15pm. Costumes and festive Halloween attire are encouraged! After the hike, head over to Lord Hobo Brewery in Woburn for a Halloween trivia session.
Registration:Adults – $30Children – $15
Register
There is no minimum fundraising amount. However, we are offering incentives, should you wish to fundraise. All registration fees must be paid in advance to secure your spot to hike.

Fundraise $100 to select any NF merchandise
Fundraise $250 and you will receive a NF cooler or crossbody bag
Fundraise $500 and you will receive a bluetooth speaker and earbud kit

Contact info@nfnortheast.org or 781-272-9936 for more information!
When life gives you mountains, put on your boots and hike!

Tuesday Takeaways Session #5 with Mike Sager
2024-11-05 12:00 - 13:00 | Zoom
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
For our fifth session of our Fall 2024 series, we welcome Mike Sager, Patient Education Manager with Alexion Pharmaceuticals! Are you interested in learning helpful techniques that will improve how you advocate for yourself? Join us for an information session where Mike will share tips and strategies on how to advocate for yourself at home, work, medical appointments and more.
Register Here
Please join us for any or all of these sessions taking place at 12pm via Zoom on Tuesdays, August through December. Find our other sessions on our event calendar: nfnortheast.org/events

Committed to Curing NF
2024-11-09 18:00 - 23:00 | Anthony’s of Malden, 105 Canal St, Malden, MA, 02148, United States
We are so excited to announce the 15th Annual Committed to Curing NF Fundraiser will take place on Saturday, November 9th 2024!
Please join the Malerba family at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food, great music, exciting raffles, casino tables, and more!
For those of you who are unable to join on this special night, try your luck in one of the drawings and/or make a tax-deductible donation to NF Northeast!
Event Tickets:
Event Tickets — $50 each
Reserve of Table of Ten — $500
Purchase Tickets
Drawing Options:
50/50 Drawing – The more tickets sold, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket
Scratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket
Mystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket
VIP EXPERIENCE DRAWING – $35 per ticket
Watch the World Champion Boston Celtics (2/23/25) OR the Boston Bruins (1/25/25) from a private luxury suite for 21 people on Level 6 of TD Garden. This VIP suite offers your group a private, comfortable atmosphere with fantastic views of the on-court action. The included 1K in-suite catering makes this a day to remember!!
Winning Package Includes:

21 suite tickets to a private luxury suite near center ice on Level 6
2 VIP parking passes on Level 1 of the TD Garden Garage
Food & Beverage package included worth $1K
Access to private BGS entrances with dedicated elevators that bring you straight from the parking garage or street level to your suite level
Early access to the arena, starting 2 hours prior to the game
A private common area for mingling plus a private restroom
A dedicated suite attendant for your food & beverage needs. Various options for food and beverage add-ons are available for purchase.
Access to Society Provisions and Society Harborview Lounge

Tax-Deductible Donation Options:
Friends of Jonathan – $100 Donation
Special Friends of Jonathan – $250 Donation
Silver Donor – $300 Donation
Gold Donor – $500 Donation
Platinum Donor – $1000 Donation
NF Champion Donor – $1,500 Donation

If you would like to make a financial gift or donate raffle items for this special night, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921.

This event is coordinated by Melissa and Michael Malerba, and it is held in honor of their seventeen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors, Committed to Curing NF has successfully raised over $950,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support, they are not going to rest until they reach their ultimate goal… the cure for NF.

Kendra Scott Gives Back Event with NF Northeast
2024-11-16 12:00 - 15:00
Join us at Kendra Scott’s Give Back Event to check two things off your list this holiday season—shopping for gifts and supporting a great cause! We’ve partnered with Kendra Scott to throw a Kendra Gives Back event during which 20% of purchases made in-store during the hosted event or digitally through kendrascott.com (using a custom code) will directly benefit NF Northeast!
We’re hosting these events in-store throughout the northeast on Saturday, November 16th from 12pm – 3pm at the following locations:

Legacy Place, Dedham, MA
Market Street, Lynnfield, MA
Garden State Shopping Mall, Paramus, NJ
Suburban Square, Ardmore, PA

Or online from Saturday, November 16th through Monday, November 18th using the code: GIVEBACK-HVQZD
Shop Online
We hope you can shop with us in-store or online to shine bright and do good this holiday season!

NF Community Chat - November
2024-11-19 19:00 - 20:00 | Zoom
NF patients and their families/friends are invited to join us the evening of Tuesday, November 19th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats!
Register Here
*After registering, you will receive a confirmation email containing information about joining the meeting!

NF Family and Community Night: Hartford CT Area
2024-12-07 18:00 - 20:00 | Cheshire Craft Brewing, 125 Commerce Ct STE 7, Cheshire, CT, 06410, United States
Calling all those who live near Hartford, CT! Join us the evening of Saturday, December 7th at Cheshire Craft Brewing for drinks and appetizers in a relaxed, casual setting with other NF locals! This is a great chance to connect with other patients and families in the area and meet others who understand life with neurofibromatosis. We hope to see you there!
RSVP to Sara-Jane at sjgriffin@nfnortheast.org or 781-272-9936 by 12/4/2024

Tuesday Takeaways Session #6 with Mike Sager
2024-12-10 12:00 - 13:00 | Zoom
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community.
Join us for our final session of 2024 to learn useful tips for having better conversations with your healthcare providers and care team. Mike Sager, Patient Education Manager at Alexion Pharmaceuticals, will show you how to use a Conversation Planning Worksheet to prepare for these discussions. You’ll leave knowing how to set goals for your interactions and how to make each conversation more effective!
Register Here
Please join us for any or all of these sessions taking place each month at 12pm via Zoom on Tuesdays. Find other sessions on our event calendar: nfnortheast.org/events
