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X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221003T100000
DTEND;TZID=America/New_York:20221003T210000
DTSTAMP:20260409T044010
CREATED:20220815T220919Z
LAST-MODIFIED:20220921T204814Z
UID:583-1664791200-1664830800@www.nfnortheast.org
SUMMARY:36th Annual NF Golf Tournament
DESCRIPTION:NF Northeast invites you to join us for our 36th Annual NF Golf Tournament on Monday\, October 3rd at Worcester Country Club in Worcester\, MA. \nCome meet Rob Ninkovich\, former linebacker who played eight seasons with the Patriots and has won two Super Bowls! Golf event will include both lunch and dinner. Stay tuned for highlight items of the silent & live auctions. Live auction will include a luxury trip donated by Grand Circle Travel. \nIndividual Golfer Registration  \nCorporate Sponsorships \n  \nThis year\, as part of the 36th Annual NF Golf Tournament at Worcester Country Club we’re hosting an exciting pre-event online auction! All are welcome to participate in the auction—not just golfers. Items featured include a luxury African Safari\, a picturesque stay in Ireland\, a magnificent ski resort weekend away in the White Mountains and more! \n\nThe online auction has officially OPENED and will close on Thursday\, September 29th at noon. The highest bids will be the starting bids during the Live Auction at the post golf tournament dinner on October 3rd at the Worcester Country Club\, and the winners will be announced at the end of the evening. Check out the prizes and place your bids:\n\n  \nONLINE AUCTION \n  \nFor more information on sponsorship for the 2022 Golf Tournament\, see below: \nSponsorship Packages \n Sponsor Benefits \n  \n \n  \nPresented by: Grand Circle Corporation \n \n\nSpecial thanks to our sponsors: \n \n \n \n   \n  \n \nThank you to Let’s Roam for generously donating auction items!
URL:https://www.nfnortheast.org/event/36th-annual-nf-golf-tournament/
LOCATION:Worcester Country Club in Worcester\, MA\, 2 Rice St\, Worcester\, MA\, 01606\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/36th-Annual-NF-Golf-Tournament-at-Worcester-Country-Club.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221023T090000
DTEND;TZID=America/New_York:20221023T100000
DTSTAMP:20260409T044010
CREATED:20221023T180542Z
LAST-MODIFIED:20221102T190053Z
UID:782-1666515600-1666519200@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families are invited to join us the morning of Sunday\, October 23rd for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for October’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-october/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/09/October.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221112T180000
DTEND;TZID=America/New_York:20221112T230000
DTSTAMP:20260409T044010
CREATED:20221101T221109Z
LAST-MODIFIED:20230104T203955Z
UID:585-1668276000-1668294000@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are excited to announce that the 13th Annual Committed to Curing NF Fundraiser will take place in-person on Saturday\, November 12\, 2022! \nPlease join us at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who aren’t ready to be back live—we will bring the raffle fun to you! Try your luck in the 50/50 Drawing\, Scratch Ticket Tree Drawing\, the Mystery Drawing\, and/or make a tax-deductible donation to NF Northeast. \n  \nDonate/Purchase Tickets \n  \nEvent Tickets: \nEvent Tickets are $50 each \nReserve of Table of Ten—$500  \n  \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nNEW—Mystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \n  \nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their fifteen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $800\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221115T190000
DTEND;TZID=America/New_York:20221115T200000
DTSTAMP:20260409T044010
CREATED:20221101T230735Z
LAST-MODIFIED:20230104T203952Z
UID:802-1668538800-1668542400@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and families are invited to join us the evening of Tuesday\, November 15th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for November’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-november/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/10/November.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221117T070000
DTEND;TZID=America/New_York:20221119T140000
DTSTAMP:20260409T044010
CREATED:20220612T050638Z
LAST-MODIFIED:20230613T194508Z
UID:579-1668668400-1668866400@www.nfnortheast.org
SUMMARY:2022 Philadelphia Marathon
DESCRIPTION:NF Northeast is offering a limited number of bibs for each event during the Philadelphia Marathon weekend! The bib offerings will include the 8k\, the half-marathon\, the combo 8K and half-marathon\, and the full marathon. \n  \nSaturday\, November 19th \nDietz & Watson Philadelphia Half Marathon – 7am Start Time for Runners/Walkers \nRothman Orthopaedics 8K Run – 11am Start Time for Runners/Walkers \nThe Patriot Challenge (8K and Half Marathon) \n\nDietz & Watson Philadelphia Half Marathon – 7am Start Time for Runners/Walkers\n\n*Please note that you must finish the half marathon no later than 10:45am* \n\nRothman Orthopaedics 8K – 11am Start Time for Runners/Walkers\n\n  \nSunday\, November 20th \nPhiladelphia Full Marathon – 7am Start Time for Runners/Walkers \n  \nWe’re also excited to be able to offer coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Philadelphia Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running or fundraising. \nFor more information on how you can secure your spot contact NF Northeast at info@nfnortheast.org or 781-272-9936.
URL:https://www.nfnortheast.org/event/philly-marathon/
LOCATION:Philadelphia\, Philadelphia\, PA\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221215T190000
DTEND;TZID=America/New_York:20221215T200000
DTSTAMP:20260409T044010
CREATED:20221101T223711Z
LAST-MODIFIED:20230104T203944Z
UID:824-1671130800-1671134400@www.nfnortheast.org
SUMMARY:NF Community Chat - Holiday Edition!
DESCRIPTION:NF patients and their families are invited to join us at 7pm the evening of Thursday\, December 15th for a festive\, community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us for our final community chat of the year! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for December’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-holiday-edition/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/10/December.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230124T193000
DTEND;TZID=America/New_York:20230124T203000
DTSTAMP:20260409T044010
CREATED:20230104T202459Z
LAST-MODIFIED:20230209T005037Z
UID:950-1674588600-1674592200@www.nfnortheast.org
SUMMARY:NF Young Adult (YA) Game Night
DESCRIPTION:Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We’ll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. Join us to meet fellow young adults with NF\, but more importantly to have some fun for an evening! \nA device with Wi-Fi/data and access to a search engine will be required to participate in the game. Registration is required. \nRegister Here
URL:https://www.nfnortheast.org/event/youthgamenight/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/NF-YA-Game-Night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230201T190000
DTEND;TZID=America/New_York:20230201T200000
DTSTAMP:20260409T044010
CREATED:20230104T204709Z
LAST-MODIFIED:20230209T005030Z
UID:962-1675278000-1675281600@www.nfnortheast.org
SUMMARY:NF Community Chat - February
DESCRIPTION:NF patients and families are invited to join us the evening of Wednesday\, February 1st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for February’s Community Chat: HERE
URL:https://www.nfnortheast.org/event/nf-community-chat-february/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/February.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230211T100000
DTEND;TZID=America/New_York:20230211T120000
DTSTAMP:20260409T044010
CREATED:20230104T203730Z
LAST-MODIFIED:20230224T220754Z
UID:954-1676109600-1676116800@www.nfnortheast.org
SUMMARY:Cupid's Chase 5K
DESCRIPTION:Join us for the 10th annual Cupid’s Chase 5K! Flat\, fast 5k race run/walk around Lake Quannapowitt in Wakefield\, MA. All proceeds are donated directly to National Multiple Sclerosis Society and Neurofibromatosis Northeast. Stay after the race for a celebration sponsored by Sam Adams! Beer is included with registration for all participants and volunteers. \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \nRegister Here \nRegistration ends February 9\, 2023 at 11:59pm EST.
URL:https://www.nfnortheast.org/event/cupids-chase-5k/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/Cupids-Chase-23.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230228T120000
DTEND;TZID=America/New_York:20230228T130000
DTSTAMP:20260409T044010
CREATED:20230221T192841Z
LAST-MODIFIED:20230302T221458Z
UID:1122-1677585600-1677589200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Dr. Vanessa Merker
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series beginning in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \n\n\nFor our first session\, we’re welcoming Dr. Vanessa Merker\, a health services researcher at Massachusetts General Hospital. Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge\, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by neurofibromatosis & allied disorders. This is a great session to join if you’ve ever wondered what clinical trials exist for NF1\, NF2 and SWN or how to find them! \n\nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Stay tuned for more information on future speakers!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-dr-vanessa-merker/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/02/Tuesday-Takeaways-WEB-GRAPHIC.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230307T193000
DTEND;TZID=America/New_York:20230307T203000
DTSTAMP:20260409T044010
CREATED:20230303T015145Z
LAST-MODIFIED:20230310T045224Z
UID:1033-1678217400-1678221000@www.nfnortheast.org
SUMMARY:NF Young Adult (YA) Game Night
DESCRIPTION:Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We’ll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. Join us to meet fellow young adults with NF\, but more importantly to have some fun for an evening! \nA device with Wi-Fi/data and access to a search engine will be required to participate in the game. Registration is required. \nRegister Here
URL:https://www.nfnortheast.org/event/nf-young-adult-ya-game-night/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/NF-YA-Game-Night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230323T120000
DTEND;TZID=America/New_York:20230323T130000
DTSTAMP:20260409T044010
CREATED:20230310T045121Z
LAST-MODIFIED:20230406T042335Z
UID:1201-1679572800-1679576400@www.nfnortheast.org
SUMMARY:NF Summer Camps: An Information  Session
DESCRIPTION:Please join us for this lunch & learn information session about summer camp opportunities for children with neurofibromatosis (NF). We’re so excited to welcome representatives from Brainy Camps (Camp New Friends) and Double H Ranch\, who will be sharing details about the unique experiences that their camps offer! \nRegistration is required. \nRegister Here \nBrainy Camps’s Camp New Friends: July 16th – July 22nd (ages 7-17) \n**Need-based scholarships are available and payment plans can be arranged \nDouble H Ranch: July 20th – July 24th
URL:https://www.nfnortheast.org/event/nf-camp-information-session/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/NF-Kids-Summer-Camp-Info-Session-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230328T120000
DTEND;TZID=America/New_York:20230328T130000
DTSTAMP:20260409T044010
CREATED:20230316T013727Z
LAST-MODIFIED:20230419T173641Z
UID:1208-1680004800-1680008400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rebecca Dodd
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series beginning in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \nFor our second session\, we’re welcoming Dr. Rebecca Dodd—Assistant Professor of Internal Medicine at the University of Iowa. Would you like to better understand the various tumors that affect patients with neurofibromatosis type 1? Join us for this one-hour session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas\, MPNSTs and more. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Find more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dr-rebecca-dodd/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/3.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230411T190000
DTEND;TZID=America/New_York:20230411T200000
DTSTAMP:20260409T044010
CREATED:20230303T022533Z
LAST-MODIFIED:20231129T171404Z
UID:1181-1681239600-1681243200@www.nfnortheast.org
SUMMARY:NF Community Chat - April
DESCRIPTION:NF patients and families are invited to join us the evening of Tuesday\, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for April’s Community Chat: HERE
URL:https://www.nfnortheast.org/event/nf-community-chat-april/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/April-23.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230425T120000
DTEND;TZID=America/New_York:20230425T130000
DTSTAMP:20260409T044010
CREATED:20230419T173652Z
LAST-MODIFIED:20230426T202522Z
UID:1267-1682424000-1682427600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Dr. James Walker
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series that began in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \nFor our third session\, we’re welcoming Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital. Dr. Walker will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF). \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Find more information about our other sessions HERE! \nTo learn more about the work the Walker Lab is doing with NF1: https://walkerlab.mgh.harvard.edu
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-dr-james-walker/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/Tuesday-Takeaways-FB_Walker.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T160000
DTEND;TZID=America/New_York:20230506T200000
DTSTAMP:20260409T044010
CREATED:20230302T185737Z
LAST-MODIFIED:20230516T135219Z
UID:1169-1683388800-1683403200@www.nfnortheast.org
SUMMARY:Hats\, Horses\, & Hope
DESCRIPTION:Hats\, Horses\, & Hope – A Kentucky Derby party in support of NF Northeast. Your evening will include Southern fare style dinner\, cash bar\, raffles\, and race betting! Prizes will be given for the best Kentucky Derby hat and outfit. Event begins at 4:00pm and will end promptly at 8:00pm. \n\n\n\nRegister Now \n \n \nRegistration Fees: \nRegistration – $100 \n\n\n\n\n\n\n\n\nRegistration fee includes a southern fare dinner! \n\n\n\n\n\n\n\n\n\n\n\n 
URL:https://www.nfnortheast.org/event/hats-horses-hope/
LOCATION:Wright-Locke Farm\, 82 Ridge Street\, Winchester\, MA\, 01890\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2023/03/Hats-Horses-and-Hope-p1.jpeg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230516T190000
DTEND;TZID=America/New_York:20230516T200000
DTSTAMP:20260409T044010
CREATED:20230502T235142Z
LAST-MODIFIED:20230522T215747Z
UID:1282-1684263600-1684267200@www.nfnortheast.org
SUMMARY:NF Community Chat - May (NF Awareness Month Edition!)
DESCRIPTION:May is an incredibly significant month for the NF community\, being NF Awareness Month\, which means gathering together and connecting as a community is even more impactful! \nNF patients and families are invited to join us at 7pm on Tuesday\, May 16th for a virtual chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We may have some fun ice-breaker games too! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.nfnortheast.org/event/nf-community-chat-may-nf-awareness-month-edition/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/May-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230517T120000
DTEND;TZID=America/New_York:20230517T130000
DTSTAMP:20260409T044010
CREATED:20230426T202427Z
LAST-MODIFIED:20230522T215744Z
UID:1272-1684324800-1684328400@www.nfnortheast.org
SUMMARY:Yoga in Solidarity for World NF Awareness Day
DESCRIPTION:We are bringing the NF community together for a relaxing lunch time yoga session on Wednesday\, May 17th at 12pm in honor of World NF Awareness Day! \nThe class will be led by Avery Rausch – a certified yoga instructor with NF2 who lives in New York City. Avery has a passion for sharing his talents and knowledge about yoga\, especially with others who are living with neurofibromatosis. \nThis class is open to all levels – please join us and bring a friend! \n*This class has been cancelled due to an unforeseen scheduling conflict with the yoga instructor.
URL:https://www.nfnortheast.org/event/yoga-in-solidarity-for-world-nf-awareness-day/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/NF-Awareness-Month-Yoga-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230530T120000
DTEND;TZID=America/New_York:20230530T130000
DTSTAMP:20260409T044010
CREATED:20230503T003000Z
LAST-MODIFIED:20230530T184748Z
UID:1286-1685448000-1685451600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Dr. Frank Buono
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our fourth and final session\, we’re welcoming Dr. Frank Buono (PhD\, Associate Research Scientist at Yale School of Medicine)\, Dale Berg (patient advocacy representative)\, and Maureen Hussey (NF1 patient caregiver). \nAre you interested in learning more about how pain affects patients with NF and allied disorders? Dr. Buono will be discussing assessing and understanding pain in neurofibromatosis (NF)\, NF2-related schwannomatosis (NF2) and schwannomatosis (SWN). He will be joined by patient advocacy representative Dale Berg and NF1 caregiver Maureen Hussey. \nRegister Here \nThank you to all who have tuned in for our Tuesday Takeaway series this spring—keep an eye out for another series in the fall!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-4-with-dr-frank-buono/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/Tuesday-Takeaways-Buono.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230612T100000
DTEND;TZID=America/New_York:20230612T200000
DTSTAMP:20260409T044010
CREATED:20230406T042302Z
LAST-MODIFIED:20230627T171144Z
UID:1230-1686564000-1686600000@www.nfnortheast.org
SUMMARY:Grand Finale 37th Golf Tournament to Benefit NF Northeast
DESCRIPTION:NF Northeast is pleased to invite you to the Grand Finale celebration of the 37th Annual Golf Tournament to benefit NF Northeast on Monday\, June 12th at Ferncroft Country Club in Middleton\, MA. \n*There is currently a waitlist for purchasing a foursome. However\, we still have space for those who would like to join for dinner and the celebration! \n\n\n\n\nAfter many years of hard work and fundraising\, the golf committee is planning their last tournament. We continue to be grateful and most appreciative of donors and sponsors who have given so much over the past 37 years. We hope that you will join us\, for golf and dinner\, to celebrate the huge accomplishments and strides that have been made possible because of the generosity of so many. \n\n\n\n\n\nThis year will feature a day of golf and a fun-filled\, celebratory night with dinner\, Live and Silent Auctions\, and entertainment by Comedian Tony Viveiros “Tony V”. Tony has performed for many years at the Comedy Connection in Boston and in many films. \n*Please note: We can accept reservations for dinner until Friday\, May 26\, 2023. We cannot accept any walk-in dinner guests. \n\n\n\n\n\n  \nIt was thirty-eight years ago that Alan Lewis\, co-founder of Grand Circle Travel\, met with NFNE Founders Karen and Bert Peluso. He and his wife Harriet were so inspired by hearing the Peluso’s vision that they chose NF Northeast as one of the organizations that the Lewis Family would support. Since that time\, year after year\, their companies\, Grand Circle Travel and Kensington Investments\, have been a major part of the Annual NF Golf Tournament as our Presenting Sponsor and as donors of luxury trips for our live auctions. \nThis past November\, we received very sad news that Alan Lewis passed away suddenly. As a tribute to Alan and his lifetime of philanthropic work\, we are dedicating this Grand Finale tournament to his memory.  \n\nPresented by: Grand Circle Corporation \n \n\n  \nLive Auction Items \n\nIf you are not attending the 37th Annual Golf Tournament on June 12th and would like to submit an absentee bid for any of the items\, please call into NF Northeast (781) 272-9936. We will take your name\, phone number\, address\, and credit card information. (No amount will be charged at this time.) Please let us know which item you would like to bid on and your maximum bid amount. On June 12th\, an absentee bidder will act as proxy for you and submit bids up and until your agreed upon limit is reached. If you win the bid\, you will be notified that night. Payment will be processed in the office over the phone with you the next business day. \n\nThe Great Rivers of Europe – Set sail through the fairytale landscape of Europe as you cruise down some of the most famous rivers in Europe. You’ll spend 14 nights aboard a private river ship. Visit UNESCO World Heritage Sites as you delve into the great history and culture of Europe’s historical cities and towns. This trip includes all meals\, international airfare\, 12 guided tours\, and 6 Exclusive Discovery Series events.  \nCountries: The Netherlands: Amsterdam; Germany: Cologne\, Koblenz\, Rudesheim\, Heidelberg\, Wertheim\, Wurzburg\, Bamberg\, Nuremberg\, Regensburg\, Passau; Austria: Melk\, Vienna. \n\nLength of trip: 16 days with air from Boston. \nAncient Egypt & the Nile River – Set out on a journey of discovery as you explore Egypt’s hidden gems. You’ll spend 7 nights in Cairo and 7 nights aboard the privately chartered small ship Nefertiti. Your journey begins in Cairo where you’ll explore a city seeped in history. Then travel to Aswan\, a treasure trove of antique ruins. Aboard the Nefertiti you’ll cruise down the Nile River and explore monuments that shaped the course of human history. Includes international airfare\, accommodations for 7 nights in Cairo and 7 nights aboard the Nefertiti\, 36 meals\, and 23 guided tours and cultural experiences. \nCountries: Egypt: Cairo\, 7-night Nile cruise\, Luxor\, Qena\, Edfu\, Kom Ombo\, Aswan\, Abu Simbel \nLength of trip: 16 days with air from Boston. \n\nWhite Mountain Winter Escape – Enjoy the beauty of the White Mountains during your weekend trip up to North Conway\, NH. This adventure includes an overnight\, two adult lift tickets at Cranmore Mountain Resort\, lunch\, dinner\, shopping at Settlers Green and a $400 Ski Haus gift card. \nEd Sheeran Live!! – Need we say more?! Tickets to see Ed Sheeran at Gillette Stadium on June 30th at 6:00 pm. This package includes two tickets mezzanine 238 row 19\, dinner at Patriot Place and transportation to and from the venue for two people.  \nFly Fishing Weekend – Come explore Pittsburg\, NH with two friends along with Golf Tournament Committee Member\, Mark Shepherd. Mark will serve as your unofficial guide and share his knowledge of the area\, where to fish\, what flies to use\, as well as techniques needed for a successful trip. Mark has been fishing in Pittsburg\, NH\, where you will find the headwaters of the Connecticut River\, for over 30 years. If you have never fished with a fly rod\, this is the opportunity to learn.  \nYour stay includes three nights lodging at Moose Alley Cabins from September 21\, 2023 until September 24th. Moose Alley Cabins\, Pittsburg\, NH’s newest lodging\, is located on Route 3 at the beginning of Moose Alley. Just 1/2 mile from First Connecticut Lake\, Moose Alley Cabins is private and peaceful with a full kitchen\, Wi-Fi\, fire pit\, TV\, washer\, and dryer. In addition\, your trip includes all meals (prepared in cabin)\, soft beverages\, $100 Bass Pro Shops gift card towards gear. Mark will also provide each of the guests with hand tied flies. Guests are responsible for supplying waders\, wading boots\, fly rods\, and a NH three-day fishing license.  
URL:https://www.nfnortheast.org/event/37th-nf-golf-tournament-grand-finale-at-ferncroft-country-club/
LOCATION:Ferncroft Country Club\, 10 Village Road\, Middleton\, MA\, 01949\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/NF-Golf-Tournament-2023.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230808T120000
DTEND;TZID=America/New_York:20230808T130000
DTSTAMP:20260409T044010
CREATED:20230725T193613Z
LAST-MODIFIED:20230822T192302Z
UID:1449-1691496000-1691499600@www.nfnortheast.org
SUMMARY:NF Fall Camps & Programs: Information Session
DESCRIPTION:Please join us to learn about upcoming fall programs in our NF community for children\, young adults\, and families! From fall family camp weekends\, to mentoring programs\, to a young adult “Campference”\, there are many exciting opportunities to consider for you and your family! Representatives from Double H Ranch\, The Hole in the Wall Gang\, and Next Step YA Programs will be sharing exciting details about their fall and winter programs. \nRegister Here
URL:https://www.nfnortheast.org/event/nf-fall-camps-programs-information-session/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/07/2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230820
DTEND;VALUE=DATE:20230821
DTSTAMP:20260409T044010
CREATED:20230407T055958Z
LAST-MODIFIED:20230822T192306Z
UID:1248-1692489600-1692575999@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2023
DESCRIPTION:NF Northeast is so excited to offer 30 bibs for the ASICS Falmouth Road Race again this year! The race will take place on Sunday\, August 20\, 2023. \nIn order to participate in the ASICS Falmouth Road Race there is an $850 fundraising minimum. \nFor more information and to register to run for NF Northeast please visit the ASICS Falmouth Road Race registration site.
URL:https://www.nfnortheast.org/event/falmouth-roadrace/
LOCATION:Woods Hole\, MA\, Woods Hole\, MA
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/Falmouth-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230909T063000
DTEND;TZID=America/New_York:20230909T150000
DTSTAMP:20260409T044010
CREATED:20230410T192306Z
LAST-MODIFIED:20230912T144735Z
UID:1254-1694241000-1694271600@www.nfnortheast.org
SUMMARY:12th Annual Coast to the Cure
DESCRIPTION:NF Northeast is excited to announce our 12th Annual Coast to the Cure ride to benefit NF Northeast on Saturday\, September 9th\, 2023 at Stage Fort Park in Gloucester\, MA! \nRegister or Donate Here \nRegister by July 20\, 2023 to receive your 2023 Coast to the Cure cycling jersey! \nParticipants will have the option to choose from 24\, 40\, or 66 mile courses. Day of registration opens at 6:30 am and staggered starts will begin at 7:00 am (see below for details). Registration fee includes rest stops with food and drink along the course\, SAG wagon\, post-ride lunch by Amigos Locos food truck and entrance to the beer garden (must be over 21 years of age). \n \nRace Schedule: \nRegistration starts – 6:30 am \n66 mile ride start time – 7:00 am \n40 mile ride start time – 8:00 am \n24 mile ride start time – 9:00 am \nLunch 11:00 am – 3:00 pm \nCourse Maps: \n24 Mile Course \n40 Mile Course \n66 Mile Course \n  \nThank you to our sponsors:
URL:https://www.nfnortheast.org/event/12th-coast-to-the-cure-2/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/12th-Coast-to-the-Cure.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T120000
DTEND;TZID=America/New_York:20230919T130000
DTSTAMP:20260409T044010
CREATED:20230905T150459Z
LAST-MODIFIED:20240521T150835Z
UID:1486-1695124800-1695128400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Dr. David Miller and Katherine Piculell
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our first Fall 2023 session\, we’re welcoming Dr. David Miller and Katherine Piculell\, Research Coordinator\, from Boston Children’s Hospital to discuss their study on tumor early detection in NF1 patients. \nRegister Here \nThe goal of the NF1 TED (Tumor Early Detection) Study is to determine whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in participants with NF1 earlier than the current standard of care. In this session\, Dr. David Miller and his study coordinator\, Katherine Piculell\, will introduce participants to the NF1 TED Study and provide an overview of this exciting observational clinical research study. \nDr. Miller is an Associate Professor of Pediatrics at Harvard Medical School and Director of the Multidisciplinary Neurofibromatosis Clinic and the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital. Through the NFRI\, he created the international Genomics of MPNST (GeM) Consortium in an effort to characterize the genomic architecture of this rare NF1-related tumor. He is joined by Katherine Piculell\, who has been working in NF research for over 6 years and is the research coordinator for the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital. \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-dr-david-miller-and-katherine-piculell/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/Sept.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230926T190000
DTEND;TZID=America/New_York:20230926T200000
DTSTAMP:20260409T044010
CREATED:20230823T190841Z
LAST-MODIFIED:20231003T143956Z
UID:1467-1695754800-1695758400@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, September 26th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-september-2/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/September-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T083000
DTEND;TZID=America/New_York:20230930T120000
DTSTAMP:20260409T044010
CREATED:20230629T193348Z
LAST-MODIFIED:20231003T144005Z
UID:1420-1696062600-1696075200@www.nfnortheast.org
SUMMARY:Hike for NF 2023: Don't Stop Climbing
DESCRIPTION:NF Northeast is excited to partner with REI for our second annual fundraising hike to climb for a cause! Join us on Saturday\, September 30th for a hike(s) tailored to hikers of all levels (minimum age to participate is 10 years old) in the beautiful Minnewaska State Park in Kerhonkson\, NY.  \nLed by expert guides from REI\, hikers will explore the Rainbow Falls hike within Minnewaska State Park. The hike will be approximately 3.5 – 4.5 hours long\, depending on skill level and course routes. \nRegister or Donate Here \nRegistration is $50\, in addition to the fundraising minimum of $200. Any additional family members can join with a fundraising minimum of $100 plus the $50 registration fee. \nStart time may be updated – stay tuned for more information. \nContact info@nfnortheast.org or 781-272-9936 for more information! \nWhen life gives you mountains\, put on your boots and hike! \n \n*Hike guide is provided by REI. All guides are at minimum CPR and Wilderness First Aid Certified.*
URL:https://www.nfnortheast.org/event/hike-for-nf-2023-dont-stop-climbing/
LOCATION:Minnewaska State Park\, Lower Awosting Lot\, Kerhonkson\, NY\, 12446\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/06/Hike-2023.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231001
DTEND;VALUE=DATE:20231002
DTSTAMP:20260409T044010
CREATED:20230629T183141Z
LAST-MODIFIED:20231003T144011Z
UID:1407-1696118400-1696204799@www.nfnortheast.org
SUMMARY:2023 Maine Marathon
DESCRIPTION:We’re so excited to offer a limited number of bibs for the 2023 Maine Marathon in Portland\, ME! Join us on Sunday\, October 1st for a lovely fall running event. Our bib offerings include the full marathon\, the full marathon relay\, and the half marathon—with a fundraising minimum of $450\, which includes your registration fee! You’ll also have the chance to design your own personalized fundraising page to help motivate donors! \nNF Northeast also offers coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Maine Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running\, nutrition\, fundraising\, and more! \nFor more information or to secure your bib\, contact NF Northeast at ktrainor@nfnortheast.org or 781-272-9936.
URL:https://www.nfnortheast.org/event/2023-maine-marathon/
LOCATION:Maine Marathon Start Line\, 60 Baxter Boulevard\, Portland\, ME\, 04101\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/06/Maine-Marathon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20260409T044010
CREATED:20230905T151528Z
LAST-MODIFIED:20231017T191355Z
UID:1514-1697544000-1697547600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rebecca Brown
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our second session\, we’re excited to welcome Dr. Rebecca Brown—Assistant Professor in the Department of Neurology at Mount Sinai Hospital in NYC. She aims to address the following questions: Is it true that skin bumps (skin neurofibromas) in neurofibromatosis type 1 (NF1) start growing because of puberty? Does pregnancy cause more bumps to grow? What about hormonal birth control? Is it safe to take gender affirming hormones? These questions do not have easy or direct answers. Tune in to hear NF expert Dr. Brown dissect the evidence (or lack thereof) for how hormones affect tumors in NF1. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dr-rebecca-brown/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Oct.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231023T190000
DTEND;TZID=America/New_York:20231023T200000
DTSTAMP:20260409T044010
CREATED:20230823T191217Z
LAST-MODIFIED:20231024T192523Z
UID:1471-1698087600-1698091200@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, October 23rd at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-october-2/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/October-23-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231104T180000
DTEND;TZID=America/New_York:20231104T230000
DTSTAMP:20260409T044010
CREATED:20230719T234000Z
LAST-MODIFIED:20231116T164505Z
UID:1447-1699120800-1699138800@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are excited to announce that the 14th Annual Committed to Curing NF Fundraiser will take place on Saturday\, November 4th 2023! \nPlease join us at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who are unable to join us on this special night\, try your luck in one of our drawings and/or make a tax-deductible donation to NF Northeast! \n  \nDonate/Purchase Tickets \n  \nEvent Tickets: \nEvent Tickets — $50 each \nReserve of Table of Ten — $500  \n  \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nMystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \n$1\,000 Cash Prize Drawing – Enter to win $1\,000 in cash. $25 per ticket \n*All raffles will be available online starting now until November 3rd at 6pm and in-person at the event. Buy your raffles now or wait for the big night! \n  \nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their fifteen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $800\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-2/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
END:VCALENDAR