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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230530T120000
DTEND;TZID=America/New_York:20230530T130000
DTSTAMP:20260404T102546
CREATED:20230503T003000Z
LAST-MODIFIED:20230530T184748Z
UID:1286-1685448000-1685451600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #4 with Dr. Frank Buono
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our fourth and final session\, we’re welcoming Dr. Frank Buono (PhD\, Associate Research Scientist at Yale School of Medicine)\, Dale Berg (patient advocacy representative)\, and Maureen Hussey (NF1 patient caregiver). \nAre you interested in learning more about how pain affects patients with NF and allied disorders? Dr. Buono will be discussing assessing and understanding pain in neurofibromatosis (NF)\, NF2-related schwannomatosis (NF2) and schwannomatosis (SWN). He will be joined by patient advocacy representative Dale Berg and NF1 caregiver Maureen Hussey. \nRegister Here \nThank you to all who have tuned in for our Tuesday Takeaway series this spring—keep an eye out for another series in the fall!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-4-with-dr-frank-buono/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/Tuesday-Takeaways-Buono.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230517T120000
DTEND;TZID=America/New_York:20230517T130000
DTSTAMP:20260404T102546
CREATED:20230426T202427Z
LAST-MODIFIED:20230522T215744Z
UID:1272-1684324800-1684328400@www.nfnortheast.org
SUMMARY:Yoga in Solidarity for World NF Awareness Day
DESCRIPTION:We are bringing the NF community together for a relaxing lunch time yoga session on Wednesday\, May 17th at 12pm in honor of World NF Awareness Day! \nThe class will be led by Avery Rausch – a certified yoga instructor with NF2 who lives in New York City. Avery has a passion for sharing his talents and knowledge about yoga\, especially with others who are living with neurofibromatosis. \nThis class is open to all levels – please join us and bring a friend! \n*This class has been cancelled due to an unforeseen scheduling conflict with the yoga instructor.
URL:https://www.nfnortheast.org/event/yoga-in-solidarity-for-world-nf-awareness-day/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/NF-Awareness-Month-Yoga-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230516T190000
DTEND;TZID=America/New_York:20230516T200000
DTSTAMP:20260404T102546
CREATED:20230502T235142Z
LAST-MODIFIED:20230522T215747Z
UID:1282-1684263600-1684267200@www.nfnortheast.org
SUMMARY:NF Community Chat - May (NF Awareness Month Edition!)
DESCRIPTION:May is an incredibly significant month for the NF community\, being NF Awareness Month\, which means gathering together and connecting as a community is even more impactful! \nNF patients and families are invited to join us at 7pm on Tuesday\, May 16th for a virtual chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We may have some fun ice-breaker games too! \nRegister Here \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://www.nfnortheast.org/event/nf-community-chat-may-nf-awareness-month-edition/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/05/May-23.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T160000
DTEND;TZID=America/New_York:20230506T200000
DTSTAMP:20260404T102546
CREATED:20230302T185737Z
LAST-MODIFIED:20230516T135219Z
UID:1169-1683388800-1683403200@www.nfnortheast.org
SUMMARY:Hats\, Horses\, & Hope
DESCRIPTION:Hats\, Horses\, & Hope – A Kentucky Derby party in support of NF Northeast. Your evening will include Southern fare style dinner\, cash bar\, raffles\, and race betting! Prizes will be given for the best Kentucky Derby hat and outfit. Event begins at 4:00pm and will end promptly at 8:00pm. \n\n\n\nRegister Now \n \n \nRegistration Fees: \nRegistration – $100 \n\n\n\n\n\n\n\n\nRegistration fee includes a southern fare dinner! \n\n\n\n\n\n\n\n\n\n\n\n 
URL:https://www.nfnortheast.org/event/hats-horses-hope/
LOCATION:Wright-Locke Farm\, 82 Ridge Street\, Winchester\, MA\, 01890\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2023/03/Hats-Horses-and-Hope-p1.jpeg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230425T120000
DTEND;TZID=America/New_York:20230425T130000
DTSTAMP:20260404T102546
CREATED:20230419T173652Z
LAST-MODIFIED:20230426T202522Z
UID:1267-1682424000-1682427600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Dr. James Walker
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series that began in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \nFor our third session\, we’re welcoming Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital. Dr. Walker will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF). \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Find more information about our other sessions HERE! \nTo learn more about the work the Walker Lab is doing with NF1: https://walkerlab.mgh.harvard.edu
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-dr-james-walker/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/04/Tuesday-Takeaways-FB_Walker.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230411T190000
DTEND;TZID=America/New_York:20230411T200000
DTSTAMP:20260404T102546
CREATED:20230303T022533Z
LAST-MODIFIED:20231129T171404Z
UID:1181-1681239600-1681243200@www.nfnortheast.org
SUMMARY:NF Community Chat - April
DESCRIPTION:NF patients and families are invited to join us the evening of Tuesday\, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for April’s Community Chat: HERE
URL:https://www.nfnortheast.org/event/nf-community-chat-april/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/April-23.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230328T120000
DTEND;TZID=America/New_York:20230328T130000
DTSTAMP:20260404T102546
CREATED:20230316T013727Z
LAST-MODIFIED:20230419T173641Z
UID:1208-1680004800-1680008400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rebecca Dodd
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series beginning in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \nFor our second session\, we’re welcoming Dr. Rebecca Dodd—Assistant Professor of Internal Medicine at the University of Iowa. Would you like to better understand the various tumors that affect patients with neurofibromatosis type 1? Join us for this one-hour session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas\, MPNSTs and more. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Find more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dr-rebecca-dodd/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/3.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230323T120000
DTEND;TZID=America/New_York:20230323T130000
DTSTAMP:20260404T102546
CREATED:20230310T045121Z
LAST-MODIFIED:20230406T042335Z
UID:1201-1679572800-1679576400@www.nfnortheast.org
SUMMARY:NF Summer Camps: An Information  Session
DESCRIPTION:Please join us for this lunch & learn information session about summer camp opportunities for children with neurofibromatosis (NF). We’re so excited to welcome representatives from Brainy Camps (Camp New Friends) and Double H Ranch\, who will be sharing details about the unique experiences that their camps offer! \nRegistration is required. \nRegister Here \nBrainy Camps’s Camp New Friends: July 16th – July 22nd (ages 7-17) \n**Need-based scholarships are available and payment plans can be arranged \nDouble H Ranch: July 20th – July 24th
URL:https://www.nfnortheast.org/event/nf-camp-information-session/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/NF-Kids-Summer-Camp-Info-Session-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230307T193000
DTEND;TZID=America/New_York:20230307T203000
DTSTAMP:20260404T102546
CREATED:20230303T015145Z
LAST-MODIFIED:20230310T045224Z
UID:1033-1678217400-1678221000@www.nfnortheast.org
SUMMARY:NF Young Adult (YA) Game Night
DESCRIPTION:Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We’ll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. Join us to meet fellow young adults with NF\, but more importantly to have some fun for an evening! \nA device with Wi-Fi/data and access to a search engine will be required to participate in the game. Registration is required. \nRegister Here
URL:https://www.nfnortheast.org/event/nf-young-adult-ya-game-night/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/NF-YA-Game-Night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230228T120000
DTEND;TZID=America/New_York:20230228T130000
DTSTAMP:20260404T102546
CREATED:20230221T192841Z
LAST-MODIFIED:20230302T221458Z
UID:1122-1677585600-1677589200@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Dr. Vanessa Merker
DESCRIPTION:Tuesday Takeaways is a new four-part lunch and learn series beginning in February of 2023! These one-hour educational lunchtime sessions are geared towards learning about updates and relevant information in our NF community. \n\n\nFor our first session\, we’re welcoming Dr. Vanessa Merker\, a health services researcher at Massachusetts General Hospital. Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge\, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by neurofibromatosis & allied disorders. This is a great session to join if you’ve ever wondered what clinical trials exist for NF1\, NF2 and SWN or how to find them! \n\nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on the last Tuesday of each month (February through May). Stay tuned for more information on future speakers!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-dr-vanessa-merker/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/02/Tuesday-Takeaways-WEB-GRAPHIC.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230211T100000
DTEND;TZID=America/New_York:20230211T120000
DTSTAMP:20260404T102546
CREATED:20230104T203730Z
LAST-MODIFIED:20230224T220754Z
UID:954-1676109600-1676116800@www.nfnortheast.org
SUMMARY:Cupid's Chase 5K
DESCRIPTION:Join us for the 10th annual Cupid’s Chase 5K! Flat\, fast 5k race run/walk around Lake Quannapowitt in Wakefield\, MA. All proceeds are donated directly to National Multiple Sclerosis Society and Neurofibromatosis Northeast. Stay after the race for a celebration sponsored by Sam Adams! Beer is included with registration for all participants and volunteers. \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \nRegister Here \nRegistration ends February 9\, 2023 at 11:59pm EST.
URL:https://www.nfnortheast.org/event/cupids-chase-5k/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/Cupids-Chase-23.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230201T190000
DTEND;TZID=America/New_York:20230201T200000
DTSTAMP:20260404T102546
CREATED:20230104T204709Z
LAST-MODIFIED:20230209T005030Z
UID:962-1675278000-1675281600@www.nfnortheast.org
SUMMARY:NF Community Chat - February
DESCRIPTION:NF patients and families are invited to join us the evening of Wednesday\, February 1st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for February’s Community Chat: HERE
URL:https://www.nfnortheast.org/event/nf-community-chat-february/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/February.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230124T193000
DTEND;TZID=America/New_York:20230124T203000
DTSTAMP:20260404T102546
CREATED:20230104T202459Z
LAST-MODIFIED:20230209T005037Z
UID:950-1674588600-1674592200@www.nfnortheast.org
SUMMARY:NF Young Adult (YA) Game Night
DESCRIPTION:Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We’ll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. Join us to meet fellow young adults with NF\, but more importantly to have some fun for an evening! \nA device with Wi-Fi/data and access to a search engine will be required to participate in the game. Registration is required. \nRegister Here
URL:https://www.nfnortheast.org/event/youthgamenight/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/01/NF-YA-Game-Night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221215T190000
DTEND;TZID=America/New_York:20221215T200000
DTSTAMP:20260404T102546
CREATED:20221101T223711Z
LAST-MODIFIED:20230104T203944Z
UID:824-1671130800-1671134400@www.nfnortheast.org
SUMMARY:NF Community Chat - Holiday Edition!
DESCRIPTION:NF patients and their families are invited to join us at 7pm the evening of Thursday\, December 15th for a festive\, community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us for our final community chat of the year! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for December’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-holiday-edition/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/10/December.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221117T070000
DTEND;TZID=America/New_York:20221119T140000
DTSTAMP:20260404T102546
CREATED:20220612T050638Z
LAST-MODIFIED:20230613T194508Z
UID:579-1668668400-1668866400@www.nfnortheast.org
SUMMARY:2022 Philadelphia Marathon
DESCRIPTION:NF Northeast is offering a limited number of bibs for each event during the Philadelphia Marathon weekend! The bib offerings will include the 8k\, the half-marathon\, the combo 8K and half-marathon\, and the full marathon. \n  \nSaturday\, November 19th \nDietz & Watson Philadelphia Half Marathon – 7am Start Time for Runners/Walkers \nRothman Orthopaedics 8K Run – 11am Start Time for Runners/Walkers \nThe Patriot Challenge (8K and Half Marathon) \n\nDietz & Watson Philadelphia Half Marathon – 7am Start Time for Runners/Walkers\n\n*Please note that you must finish the half marathon no later than 10:45am* \n\nRothman Orthopaedics 8K – 11am Start Time for Runners/Walkers\n\n  \nSunday\, November 20th \nPhiladelphia Full Marathon – 7am Start Time for Runners/Walkers \n  \nWe’re also excited to be able to offer coaching & mentorship support from some friends of NFNE: Scot Dedeo (Coach) and Beth Hanlon (Mentor). Both Scot and Beth bring a wealth of experience in running & endurance races\, and would love to help others prepare to run the Philadelphia Marathon. This support is open to runners of all levels—from newbie to experienced runner. Scot is excited to work with runners to create a training program that will help them achieve their goals\, and Beth is available to assist with any and all questions about race running or fundraising. \nFor more information on how you can secure your spot contact NF Northeast at info@nfnortheast.org or 781-272-9936.
URL:https://www.nfnortheast.org/event/philly-marathon/
LOCATION:Philadelphia\, Philadelphia\, PA\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221115T190000
DTEND;TZID=America/New_York:20221115T200000
DTSTAMP:20260404T102546
CREATED:20221101T230735Z
LAST-MODIFIED:20230104T203952Z
UID:802-1668538800-1668542400@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and families are invited to join us the evening of Tuesday\, November 15th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for November’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-november/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/10/November.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221112T180000
DTEND;TZID=America/New_York:20221112T230000
DTSTAMP:20260404T102546
CREATED:20221101T221109Z
LAST-MODIFIED:20230104T203955Z
UID:585-1668276000-1668294000@www.nfnortheast.org
SUMMARY:Committed to Curing NF
DESCRIPTION:We are excited to announce that the 13th Annual Committed to Curing NF Fundraiser will take place in-person on Saturday\, November 12\, 2022! \nPlease join us at Anthony’s of Malden from 6 p.m. to 11 p.m. for a fun-filled evening that features delicious food\, great music\, exciting raffles\, casino tables\, and more! \nFor those of you who aren’t ready to be back live—we will bring the raffle fun to you! Try your luck in the 50/50 Drawing\, Scratch Ticket Tree Drawing\, the Mystery Drawing\, and/or make a tax-deductible donation to NF Northeast. \n  \nDonate/Purchase Tickets \n  \nEvent Tickets: \nEvent Tickets are $50 each \nReserve of Table of Ten—$500  \n  \nDrawing Options: \n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 Drawing will split the final pot with NF Northeast. $25 per ticket \nScratch Ticket Tree – Enter to win $300 worth of scratch tickets! $25 per ticket \nNEW—Mystery Drawing – Enter to win $200 worth of gift cards to a variety of locations! $25 per ticket \n  \nTax-Deductible Donation Options: \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1000 Donation \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their fifteen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $800\,000 for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf/
LOCATION:Anthony’s of Malden\, 105 Canal St\, Malden\, MA\, 02148\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/C2C.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221023T090000
DTEND;TZID=America/New_York:20221023T100000
DTSTAMP:20260404T102546
CREATED:20221023T180542Z
LAST-MODIFIED:20221102T190053Z
UID:782-1666515600-1666519200@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families are invited to join us the morning of Sunday\, October 23rd for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for October’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-october/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/09/October.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221003T100000
DTEND;TZID=America/New_York:20221003T210000
DTSTAMP:20260404T102546
CREATED:20220815T220919Z
LAST-MODIFIED:20220921T204814Z
UID:583-1664791200-1664830800@www.nfnortheast.org
SUMMARY:36th Annual NF Golf Tournament
DESCRIPTION:NF Northeast invites you to join us for our 36th Annual NF Golf Tournament on Monday\, October 3rd at Worcester Country Club in Worcester\, MA. \nCome meet Rob Ninkovich\, former linebacker who played eight seasons with the Patriots and has won two Super Bowls! Golf event will include both lunch and dinner. Stay tuned for highlight items of the silent & live auctions. Live auction will include a luxury trip donated by Grand Circle Travel. \nIndividual Golfer Registration  \nCorporate Sponsorships \n  \nThis year\, as part of the 36th Annual NF Golf Tournament at Worcester Country Club we’re hosting an exciting pre-event online auction! All are welcome to participate in the auction—not just golfers. Items featured include a luxury African Safari\, a picturesque stay in Ireland\, a magnificent ski resort weekend away in the White Mountains and more! \n\nThe online auction has officially OPENED and will close on Thursday\, September 29th at noon. The highest bids will be the starting bids during the Live Auction at the post golf tournament dinner on October 3rd at the Worcester Country Club\, and the winners will be announced at the end of the evening. Check out the prizes and place your bids:\n\n  \nONLINE AUCTION \n  \nFor more information on sponsorship for the 2022 Golf Tournament\, see below: \nSponsorship Packages \n Sponsor Benefits \n  \n \n  \nPresented by: Grand Circle Corporation \n \n\nSpecial thanks to our sponsors: \n \n \n \n   \n  \n \nThank you to Let’s Roam for generously donating auction items!
URL:https://www.nfnortheast.org/event/36th-annual-nf-golf-tournament/
LOCATION:Worcester Country Club in Worcester\, MA\, 2 Rice St\, Worcester\, MA\, 01606\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/36th-Annual-NF-Golf-Tournament-at-Worcester-Country-Club.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220924
DTEND;VALUE=DATE:20220925
DTSTAMP:20260404T102546
CREATED:20220815T220556Z
LAST-MODIFIED:20220907T210531Z
UID:578-1663977600-1664063999@www.nfnortheast.org
SUMMARY:Hike For NF: Never Stop Climbing
DESCRIPTION:NF Northeast is excited to partner with REI for our first annual fundraising hike to climb for a cause! Join us for hikes (both Beginner and Intermediate level) in the Mt. Monadnock Region of Southern New Hampshire—filled with beautiful views and ending with a post-hike picnic! \nTo support our fundraising goals\, all participants must commit to a fundraising minimum of $250. All participants will immediately have access to a fully customizable fundraising page. \nINCLUDED IN THE DAY: \n\nExpert REI Hike Leaders\nHealthy Snacks\nPost hike picnic or boxed lunch to-go\n\nEmail info@nfnortheast.org to let us know you’re interested and reserve your spot – no registration fee required! \nWhen life gives you mountains\, put on your boots and hike!
URL:https://www.nfnortheast.org/event/hike-for-nf-never-stop-climbing/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/Hike.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220920T190000
DTEND;TZID=America/New_York:20220920T200000
DTSTAMP:20260404T102546
CREATED:20220917T181927Z
LAST-MODIFIED:20220917T181927Z
UID:779-1663700400-1663704000@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and their families are invited to join us on Tuesday\, September 20th at 7:00pm for a community-building virtual chat! These chats are a nice opportunity to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats. \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nRegister for September’s Community Chat HERE!
URL:https://www.nfnortheast.org/event/nf-community-chat-september/
LOCATION:Zoom
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/09/September.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220910T063000
DTEND;TZID=America/New_York:20220910T140000
DTSTAMP:20260404T102546
CREATED:20220815T220509Z
LAST-MODIFIED:20220907T220131Z
UID:576-1662791400-1662818400@www.nfnortheast.org
SUMMARY:11th Coast to the Cure
DESCRIPTION:  \nNF Northeast is excited to announce that our 11th Annual Coast to the Cure will be on September 10th\, 2022 at Stage Fort Park in Gloucester\, MA. \nRegister or Donate Here \nRegister by July 27 to reserve your 2022 Coast Cycle Jersey! \nParticipants will have the option to choose from 24\, 50\, or 100 mile courses. Day of registration opens at 6:30am and staggered starts will begin at 7:00am (see below for details). Rest stops with food and drink will be available along the course\, and all participants/supporters are welcome to attend a post-ride lunch and beer garden celebration! \n*SAG Wagons for supported rides will be available* \nRace Schedule: \nRegistration starts at 6:30 am \n100 mile ride start time: 7:00 – 7:15 am \n50 mile ride start time: 8:00 – 8:15 am \n24 mile ride start time: 9:00 – 9:15 am \n \nThank you to our sponsors: \n \n \n \n \n \n \nSpecial thanks to our print media partner: \n \nSpecial thanks to our broadcast media partner:
URL:https://www.nfnortheast.org/event/11th-coast-to-the-cure/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/Coast.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220821
DTEND;VALUE=DATE:20220822
DTSTAMP:20260404T102546
CREATED:20220815T220243Z
LAST-MODIFIED:20220815T220243Z
UID:574-1661040000-1661126399@www.nfnortheast.org
SUMMARY:ASICS Falmouth Road Race 2022
DESCRIPTION:NF Northeast is excited for the upcoming 50th running of the ASICS Falmouth Road Race in 2022! The race will be held on Sunday\, August 21 and will feature all levels of runners. \nOur team is full at 30 runners. We have a waiting list for anyone who is still looking for a bib. \nThe Falmouth Road Race was established in 1973 and has become one of the premier running events of the summer season. Each year the race draws an international field of Olympian\, elite\, and recreational runners to enjoy the iconic 7-mile seaside course. The nonprofit Falmouth Road Race organization is committed to promoting health and fitness through community programs and philanthropic giving. \nSince 2000\, Falmouth Road Race\, Inc. has helped charity partners raise over $50 million and bring awareness to their causes. The Numbers for Nonprofits charity runner program\, launched by former race co-director Rich Sherman\, not only assists charities in raising much-needed funds\, it also brings people together and provides deeper meaning to running the ASICS Falmouth Road Race. Passionate individuals join a team representing a charity that resonates with them\, which creates an uplifting experience to which runners are excited to return year after year—many say it’s the most gratifying experience they’ve ever had. NF Northeast is proud to be part of this program.
URL:https://www.nfnortheast.org/event/asics-falmouth-road-race-2022/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/08/asics-falmouth-road-race.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220802T183000
DTEND;TZID=America/New_York:20220802T183000
DTSTAMP:20260404T102546
CREATED:20220726T144529Z
LAST-MODIFIED:20220726T154945Z
UID:458-1659465000-1659465000@www.nfnortheast.org
SUMMARY:Hike for NF: Never Stop Climbing Information Session
DESCRIPTION:Join us for an information session about our upcoming Hike for NF: Never Stop Climbing fundraising event at 6:30pm on Tuesday\, August 2! \nREI Hike Leader Paul Gagnon will be joining us over Zoom to answer any and all questions about: \n\nLevel of difficulty\nWhat to expect during the hike\nWhat to bring with you\nAge and pet restrictions\nFundraising minimums\n\nHike For NF will take place in the beautiful Mt. Monadnock region of New Hampshire on September 24th\, 2022. The deadline to register for Hike for NF is September 3rd. \nFor questions or to register\, please reach out to Sheena Loiaocono at sloiaocono@nfnortheast.org or 781-272-9936 (ext. 208).
URL:https://www.nfnortheast.org/event/hike-for-nf-never-stop-climbing-information-session/
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2022/07/Philly-Marathon-Info-Meeting.png
ORGANIZER;CN="Paul Gagnon/Sheena Loiaocono":MAILTO:sloiaocono@nfnortheast.org
END:VEVENT
END:VCALENDAR