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X-WR-CALNAME:Neurofibromatosis Northeast
X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251107T180000
DTEND;TZID=America/New_York:20251107T210000
DTSTAMP:20260415T035801
CREATED:20250910T020513Z
LAST-MODIFIED:20251107T201624Z
UID:3265-1762538400-1762549200@www.nfnortheast.org
SUMMARY:Committed to Curing NF 2025
DESCRIPTION:Join us as we celebrate Committed to Curing NF’s 16th year being committed to finding a CURE for NF! New venue\, SMALLER SCALE\, but always the same goal…CURE NF! \nThe Malerba Family joyfully invites you to be a part of their mission to Cure NF on Friday\, November 7th at The Great American Beer Hall in Medford. It will be a cocktail party featuring light appetizers\, great company\, and chances to win some exciting raffles. \nAll raffles will be available ONLINE starting now until November 6th at 6:00pm\, as well as IN PERSON at the event. Buy your raffles now or wait for the big night! For those of you who are unable to join on this special night\, try your luck in one of the drawings and/or make a tax-deductible donation to NF Northeast. \nEvent Tickets: \nFree to Attend! \nPurchase Tickets \nRaffle Options: \n(Available for purchase ONLINE or AT the event) \n\n50/50 Drawing – The more tickets sold\, the more money you can win! The winner of the 50/50 drawing will split the final pot with NF Northeast. $25 per chance\nScratch Ticket Tree Drawing – Enter to win $300 worth of scratch tickets. $25 per chance\n\nVIP EXPERIENCE DRAWING – $35 per chance \nTake a chance to watch the Boston Bruins vs New York Rangers (01/10/26) OR the Boston Celtics vs. Milwaukee Bucks (02/01/26) from a private luxury suite for 21 people on Level 6 of TD Garden. This VIP suite offers your group a private\, comfortable atmosphere with fantastic views of the on-court action. The included 1K in-suite catering makes this a day to remember!! \nWinning Package Includes: \n\n\n\n21 suite tickets to a private luxury suite near center ice on Level 6\n2 VIP parking passes on Level 1 of the TD Garden Garage\nFood & Beverage package included worth $1K\nAccess to private BGS entrances with dedicated elevators that bring you straight from the parking garage or street level to your suite level\nEarly access to the arena\, starting 2 hours prior to the game\nA private common area for mingling plus a private restroom\nA dedicated suite attendant for your food & beverage needs. Various options for food and beverage add-ons are available for purchase.\nAccess to Society Provisions and Society Harborview Lounge\n\n\n\n  \nTax-Deductible Donation Options: \nLooking to make a donation? Choose one of our tax-deductible donor options and be featured in our event program. \nFriends of Jonathan – $100 Donation \nSpecial Friends of Jonathan – $250 Donation \nSilver Donor – $300 Donation \nGold Donor – $500 Donation \nPlatinum Donor – $1\,000 Donation \nNF Champion Donor – $1\,500 Donation \n  \nIf you would like to make a financial gift or donate raffle items for this special night\, contact Melissa Malerba at melissamalerba2028@gmail.com or 781-883-0921. \n \nThis event is coordinated by Melissa and Michael Malerba\, and it is held in honor of their eighteen-year-old son Jonathan who was diagnosed with neurofibromatosis type 1 in 2009. Through the generous support of previous donors\, Committed to Curing NF has successfully raised over $1 million for Neurofibromatosis Northeast! While the Malerbas are overjoyed with the tremendous outpouring of support\, they are not going to rest until they reach their ultimate goal… the cure for NF. 
URL:https://www.nfnortheast.org/event/committed-to-curing-nf-2025/
LOCATION:The Great American Beer Hall\, 142 Mystic Avenue\, Medford\, 02155\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/Committed-to-Curing-2025-WEB.png
ORGANIZER;CN="Melissa Malerba":MAILTO:melissamalerba2028@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260214T100000
DTEND;TZID=America/New_York:20260214T120000
DTSTAMP:20260415T035801
CREATED:20260107T232211Z
LAST-MODIFIED:20260128T172503Z
UID:3696-1771063200-1771070400@www.nfnortheast.org
SUMMARY:13th Annual Cupid's Chase 5K
DESCRIPTION:Join us for the 13th annual Cupid’s Chase 5K on Saturday\, February 8th! Flat\, fast 5k run/walk around Lake Quannapowitt in Wakefield\, MA. 100% of proceeds from the race are donated to Neurofibromatosis Northeast. Stay afterwards for a post-race celebration including awards and a beer from Samuel Adams (beer is included with registration for all participants and volunteers over 21)! \nRegister Here \nEvent Distance: 5K  (3.1 Miles) \nStart Time: 10:00am \nRegistration: 8am – 9:45am \nStart Location: Quannapowitt Parkway\, Wakefield MA \nFinish Location: Lakeside Inn parking lot\, Wakefield MA \n*Race shirt guaranteed if registered by 1/20/2026 \nOnline registration ends on Thursday\, February 12th at noon. Runners/walkers can register at packet pick-up Friday night at Marathon Sports in Melrose from  4pm-7pm and at Lakeside Inn Saturday morning from 8am-9:45 am. \nRegistration Fees \n\nEarly Bird (through 12/31) – $30\nStandard (1/1-2/7) – $35\nLate (2/8-2/12) – $40\nRace Day – $45\n\nNo Shirt Option:  Save $5 \nCourse Map
URL:https://www.nfnortheast.org/event/13th-annual-cupids-chase-5k/
LOCATION:Lakeside Inn – Lake Quannapowitt\, 599 North Ave\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/12/WEB-Event-Page-Featured-Images.png
ORGANIZER;CN="Beth Hanlon":MAILTO:cupidschasema@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260415T035801
CREATED:20260302T135608Z
LAST-MODIFIED:20260413T133004Z
UID:3439-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Hartford\, CT
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-hartford-ct-2026/
LOCATION:Dunkin’ Park\, 1214 Main Street\, Hartford\, CT\, 06103\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Hartford-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260415T035801
CREATED:20260303T180908Z
LAST-MODIFIED:20260413T133017Z
UID:3394-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Westchester County\, NY
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-westchester-county-ny-2026/
LOCATION:FDR State Park\, 2957 Crompond Rd\, Yorktown Heights\, NY\, 10598
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Westchester-NY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T090000
DTEND;TZID=America/New_York:20260503T120000
DTSTAMP:20260415T035801
CREATED:20251027T153058Z
LAST-MODIFIED:20251124T150700Z
UID:3406-1777798800-1777809600@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Philadelphia
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-philadelphia-2026/
LOCATION:Wilson Farm Park\, 500 Lee Road\, Chesterbrook\, PA\, 19087
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Greater-Philadelphia.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T090000
DTEND;TZID=America/New_York:20260509T120000
DTSTAMP:20260415T035801
CREATED:20251027T154538Z
LAST-MODIFIED:20251223T140216Z
UID:3643-1778317200-1778328000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Rhode Island
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS 
URL:https://www.nfnortheast.org/event/steps2cure-nf-rhode-island/
LOCATION:Colt State Park\, Colt State Park\, Route 114\, Bristol\, RI\, 02809
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Rhode-Island.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T150000
DTSTAMP:20260415T035801
CREATED:20251001T161115Z
LAST-MODIFIED:20251226T165705Z
UID:3399-1778328000-1778338800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Central New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-central-new-york-2026/
LOCATION:Forest Park\, 21 Ripley Rd\, Camden\, NY\, 13316\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Camden.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20260415T035801
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260415T035801
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260525
DTSTAMP:20260415T035801
CREATED:20251014T221001Z
LAST-MODIFIED:20260128T172915Z
UID:3850-1779408000-1779667199@www.nfnortheast.org
SUMMARY:NF Northeast at the Buffalo Marathon Weekend
DESCRIPTION:Run (or Walk) for a Purpose – Buffalo Marathon Weekend\nMay 23–24\, 2026 | Buffalo\, NY \nJoin NF Northeast for a weekend of running\, walking\, and community at the Buffalo Marathon Weekend. Your participation supports individuals and families affected by Neurofibromatosis (NF). \nHow to Participate\n\nRegister for your race first on the official Buffalo Marathon site: Buffalo Marathon Registration\nComplete the NF Northeast Google Form: NF Northeast Form\nOptional fundraising: Share our Qgiv donation page: Donate to NF Northeast. No fundraising minimum required.\n\nEvents: 5K • Half Marathon • Full Marathon\nWalkers welcome • Kids events available \nShare Your Story: Send us your “Why I Run for NF” story and we’ll do our best to feature it on our website or social media!
URL:https://www.nfnortheast.org/event/event-buffalo-marathon-weekend-2026/
LOCATION:Buffalo\, New York
CATEGORIES:Awareness,Endurance Event,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/01/Buffalo-Marathon-Facebook-Post1.png
ORGANIZER;CN="Kim Trainor":MAILTO:ktrainor@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260415T035801
CREATED:20251027T154537Z
LAST-MODIFIED:20260213T225914Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260415T035801
CREATED:20251027T153331Z
LAST-MODIFIED:20251124T150757Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260415T035801
CREATED:20251027T154308Z
LAST-MODIFIED:20251124T150517Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260415T035801
CREATED:20260211T172249Z
LAST-MODIFIED:20260218T223338Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
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