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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20231114T120000
DTEND;TZID=America/New_York:20231114T130000
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CREATED:20230905T171557Z
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UID:1517-1699963200-1699966800@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #3 with Leah & Dasher Manth
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our third session\, we’re PAWS-itively thrilled to welcome Leah Manth\, MSW & Dasher Manth\, Service Dog Extraordinaire! Leah and Dasher will discuss the benefits that a service dog can provide for patients and families affected by neurofibromatosis. Have you wondered what type of assistance and comfort a service dog can provide? Or how someone might go about applying for one? What the difference is between service\, therapy\, and emotional support dogs? Leah will share her experience\, answer questions\, and much more! \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-3-with-leah-dasher-manth/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Nov.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20231017T191355Z
CREATED:20230905T151528Z
LAST-MODIFIED:20231017T191355Z
UID:1514-1697544000-1697547600@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #2 with Dr. Rebecca Brown
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our second session\, we’re excited to welcome Dr. Rebecca Brown—Assistant Professor in the Department of Neurology at Mount Sinai Hospital in NYC. She aims to address the following questions: Is it true that skin bumps (skin neurofibromas) in neurofibromatosis type 1 (NF1) start growing because of puberty? Does pregnancy cause more bumps to grow? What about hormonal birth control? Is it safe to take gender affirming hormones? These questions do not have easy or direct answers. Tune in to hear NF expert Dr. Brown dissect the evidence (or lack thereof) for how hormones affect tumors in NF1. \nRegister Here \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-2-with-dr-rebecca-brown/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/09/Oct.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20230919T120000
DTEND;TZID=America/New_York:20230919T130000
DTSTAMP:20240521T150835Z
CREATED:20230905T150459Z
LAST-MODIFIED:20240521T150835Z
UID:1486-1695124800-1695128400@www.nfnortheast.org
SUMMARY:Tuesday Takeaways Session #1 with Dr. David Miller and Katherine Piculell
DESCRIPTION:Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community. \nFor our first Fall 2023 session\, we’re welcoming Dr. David Miller and Katherine Piculell\, Research Coordinator\, from Boston Children’s Hospital to discuss their study on tumor early detection in NF1 patients. \nRegister Here \nThe goal of the NF1 TED (Tumor Early Detection) Study is to determine whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in participants with NF1 earlier than the current standard of care. In this session\, Dr. David Miller and his study coordinator\, Katherine Piculell\, will introduce participants to the NF1 TED Study and provide an overview of this exciting observational clinical research study. \nDr. Miller is an Associate Professor of Pediatrics at Harvard Medical School and Director of the Multidisciplinary Neurofibromatosis Clinic and the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital. Through the NFRI\, he created the international Genomics of MPNST (GeM) Consortium in an effort to characterize the genomic architecture of this rare NF1-related tumor. He is joined by Katherine Piculell\, who has been working in NF research for over 6 years and is the research coordinator for the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital. \nPlease join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December). \nFind more information about our other sessions HERE!
URL:https://www.nfnortheast.org/event/tuesday-takeaways-session-1-with-dr-david-miller-and-katherine-piculell/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/08/Sept.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
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DTSTART;TZID=America/New_York:20230323T120000
DTEND;TZID=America/New_York:20230323T130000
DTSTAMP:20230406T042335Z
CREATED:20230310T045121Z
LAST-MODIFIED:20230406T042335Z
UID:1201-1679572800-1679576400@www.nfnortheast.org
SUMMARY:NF Summer Camps: An Information  Session
DESCRIPTION:Please join us for this lunch & learn information session about summer camp opportunities for children with neurofibromatosis (NF). We’re so excited to welcome representatives from Brainy Camps (Camp New Friends) and Double H Ranch\, who will be sharing details about the unique experiences that their camps offer! \nRegistration is required. \nRegister Here \nBrainy Camps’s Camp New Friends: July 16th – July 22nd (ages 7-17) \n**Need-based scholarships are available and payment plans can be arranged \nDouble H Ranch: July 20th – July 24th
URL:https://www.nfnortheast.org/event/nf-camp-information-session/
LOCATION:Zoom
CATEGORIES:Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2023/03/NF-Kids-Summer-Camp-Info-Session-WEB.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
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