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X-WR-CALDESC:Events for Neurofibromatosis Northeast
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DTSTART;TZID=America/New_York:20260707T190000
DTEND;TZID=America/New_York:20260707T200000
DTSTAMP:20260626T150807
CREATED:20260531T142427Z
LAST-MODIFIED:20260602T190918Z
UID:4453-1783450800-1783454400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - July
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, July 7th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-july/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/05/July-2026.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260720T183000
DTEND;TZID=America/New_York:20260720T200000
DTSTAMP:20260626T150807
CREATED:20260601T184806Z
LAST-MODIFIED:20260611T152340Z
UID:4474-1784572200-1784577600@www.nfnortheast.org
SUMMARY:Stronger Together in Schwannomatosis: Restorative Sound Meditation with Gabrielle Saunders
DESCRIPTION:Join us for a deeply restorative virtual sound meditation led by Gabrielle Saunders\, using crystal alchemy bowls to quiet the mind\, regulate the nervous system\, and ease stress. \nGet cozy\, dim the lights\, and give yourself an hour of intentional stillness and care. No experience necessary — simply come as you are. \n📅 Date: Monday\, July 20\, 2026 🕡 Time: 6:30 – 8:00 PM EST 📍 Location: Virtual (Zoom) \nRegister today using the link below. We hope you’ll join us for this peaceful evening of connection and care. \nREGISTER HERE
URL:https://www.nfnortheast.org/event/stronger-together-in-schwannomatosis-restorative-sound-meditation-with-gabrielle-saunders/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/SWN_Summer_Session_16x9.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260804T190000
DTEND;TZID=America/New_York:20260804T200000
DTSTAMP:20260626T150807
CREATED:20260524T152300Z
LAST-MODIFIED:20260624T153209Z
UID:4506-1785870000-1785873600@www.nfnortheast.org
SUMMARY:NF1 Community Education Series: Back to School
DESCRIPTION:NF Northeast invites you to join our Back to School program\, part of our NF1 Community Education Series sponsored by Alexion. \nLed by Alexion Patient Education Manager Mike Sager\, this free virtual session covers how to navigate the new school year for those affected by rare disease\, including how to collaborate with schools and avoid common\, frustrating obstacles. \nTuesday\, August 4th at 7:00 PM EST\nVirtual on Zoom \nRegister today using the link below or scan the QR code on the flyer.\nREGISTER HERE \nQuestions? Reach out to us anytime at nfnortheast.org. This program may be available in Spanish upon request.
URL:https://www.nfnortheast.org/event/nf1-community-education-series-back-to-school/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/Alexion_Back_to_School.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T190000
DTEND;TZID=America/New_York:20260811T200000
DTSTAMP:20260626T150807
CREATED:20260513T154450Z
LAST-MODIFIED:20260526T161905Z
UID:4456-1786474800-1786478400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - August
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Tuesday\, August 11th\, for a virtual NF community chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats!  \nRegister Here! \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-august/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/05/August-2026.jpg
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260626T150807
CREATED:20260530T162249Z
LAST-MODIFIED:20260609T140951Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T083000
DTEND;TZID=America/New_York:20260926T160000
DTSTAMP:20260626T150807
CREATED:20260502T184315Z
LAST-MODIFIED:20260623T175941Z
UID:4464-1790411400-1790438400@www.nfnortheast.org
SUMMARY:Beyond Sound 2026: A Day for NF2-SWN Patients & Care-Partners
DESCRIPTION:Mark your calendars! Beyond Sound 2026 is an empowering\, in-person NF2 workshop\, where you’ll learn about and experience communication strategies and resources for living with hearing loss. Join us to learn about updates in NF2 and to build connections in the NF2 community. \nREGISTER HERE 
URL:https://www.nfnortheast.org/event/beyond-sound-2026-a-day-for-nf2-swn-patients-care-partners/
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=application/pdf:https://www.nfnortheast.org/wp-content/uploads/2026/05/BEYOND-SOUND-2026-FB-save-the-date.pdf
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261014T190000
DTEND;TZID=America/New_York:20261014T200000
DTSTAMP:20260626T150807
CREATED:20260424T145822Z
LAST-MODIFIED:20260624T152241Z
UID:4501-1792004400-1792008000@www.nfnortheast.org
SUMMARY:NF1 Community Education Series: Career Readiness
DESCRIPTION:NF Northeast invites you to join our Career Readiness program\, part of our NF1 Community Education Series sponsored by Alexion. \nLed by Alexion Patient Education Manager Kristen Clark\, this free virtual session covers resume writing\, interview preparation\, and job search essentials\, including dos and don’ts and advice for navigating common interview questions. \nWednesday\, October 14th at 7:00 PM EST\nVirtual on Zoom \nRegister today using the link below or scan the QR code on the flyer.\nREGISTER HERE \nQuestions? Reach out to us anytime at nfnortheast.org. This program may be available in Spanish upon request.
URL:https://www.nfnortheast.org/event/nf1-community-education-series-career-readiness/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/06/Alexion_Career_Readiness.png
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