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X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T190000
DTEND;TZID=America/New_York:20250715T200000
DTSTAMP:20260426T091030
CREATED:20250603T181451Z
LAST-MODIFIED:20250715T231729Z
UID:3032-1752606000-1752609600@www.nfnortheast.org
SUMMARY:NF Community Coffee Chat - July
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, July 15th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-july25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/July-25-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250814T190000
DTEND;TZID=America/New_York:20250814T200000
DTSTAMP:20260426T091030
CREATED:20250603T181223Z
LAST-MODIFIED:20250819T143524Z
UID:3030-1755198000-1755201600@www.nfnortheast.org
SUMMARY:NF Community Chat - August
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Thursday\, August 14th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-august25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/August-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T060000
DTEND;TZID=America/New_York:20250906T150000
DTSTAMP:20260426T091030
CREATED:20250213T184755Z
LAST-MODIFIED:20250909T144929Z
UID:2791-1757138400-1757170800@www.nfnortheast.org
SUMMARY:Coast to the Cure 2025
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 14th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2025 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, Coast to the Cure water bottle\, SAG wagon\, post-ride lunch by a local food truck\, and beer garden entrance (21+). \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site ($25 per additional ticket). \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.\n  \nSpecial thanks to our Mission Sponsor: \n \nThank you to our Platinum Sponsor:
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2025/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Coast-Web-Graphic-2.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250920T090000
DTEND;TZID=America/New_York:20250920T100000
DTSTAMP:20260426T091030
CREATED:20250903T032139Z
LAST-MODIFIED:20250923T143418Z
UID:3238-1758358800-1758362400@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and families are invited to join us at 9am on Saturday\, September 20th for a virtual NF coffee chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-sept25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/September-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T190000
DTEND;TZID=America/New_York:20251021T200000
DTSTAMP:20260426T091030
CREATED:20250903T032410Z
LAST-MODIFIED:20250924T203224Z
UID:3241-1761073200-1761076800@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Tuesday\, October 21st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-oct25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/October-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251115T090000
DTEND;TZID=America/New_York:20251115T100000
DTSTAMP:20260426T091030
CREATED:20250924T202718Z
LAST-MODIFIED:20250924T203303Z
UID:3290-1763197200-1763200800@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and families are invited to join us at 9am on Saturday\, November 15th for a virtual NF coffee chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-november25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/November-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260426T091030
CREATED:20251201T213053Z
LAST-MODIFIED:20251222T195942Z
UID:3293-1766084400-1766088000@www.nfnortheast.org
SUMMARY:NF Holiday Community Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Thursday\, December 18th for a virtual\, holiday community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-december25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2025/09/December-25-holiday2-1.jpg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T190000
DTEND;TZID=America/New_York:20260122T200000
DTSTAMP:20260426T091030
CREATED:20231222T195936Z
LAST-MODIFIED:20260204T143346Z
UID:3820-1769108400-1769112000@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm EST the evening of Thursday\, January 22nd for a virtual community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-january/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/November-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260214T090000
DTEND;TZID=America/New_York:20260214T100000
DTSTAMP:20260426T091031
CREATED:20260106T232134Z
LAST-MODIFIED:20260128T172623Z
UID:3825-1771059600-1771063200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, February 14th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-february/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/October-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260222T140000
DTEND;TZID=America/New_York:20260222T160000
DTSTAMP:20260426T091031
CREATED:20260205T183628Z
LAST-MODIFIED:20260205T183628Z
UID:4170-1771768800-1771776000@www.nfnortheast.org
SUMMARY:Family Bowling Event - Connecticut
DESCRIPTION:We’re thrilled to bring the Hartford area NF Northeast community together for an afternoon of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \n$13 per bowler (includes shoes) – pay at the door. Food and drink will be available for purchase.  RSVP encouraged. \nRSVP HERE.
URL:https://www.nfnortheast.org/event/family-bowling-connecticut/
LOCATION:Spare Time\, 177 Farmington Ave\, Bristol\, CT\, 06010\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/02/HartfordBowlingbanner.jpg
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T190000
DTEND;TZID=America/New_York:20260303T200000
DTSTAMP:20260426T091031
CREATED:20251122T161744Z
LAST-MODIFIED:20251226T165900Z
UID:3829-1772564400-1772568000@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 3rd at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-march/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/December-22-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T173000
DTEND;TZID=America/New_York:20260315T193000
DTSTAMP:20260426T091031
CREATED:20260215T230542Z
LAST-MODIFIED:20260306T185432Z
UID:2731-1773595800-1773603000@www.nfnortheast.org
SUMMARY:Community Bowling Night - Boston
DESCRIPTION:We’re thrilled to bring the Rhode Island and Boston area NF Northeast community together for a night of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \nThis event is free to attend – RSVP encouraged.  Bowling and shoes are complimentary\, thanks to the generosity of Kings Bowling. Food and drink will be available for purchase.\n\nRSVP Here
URL:https://www.nfnortheast.org/event/family-bowling-night-boston/
LOCATION:Kings Dedham – Legacy Place\, 600 Legacy Place\, Dedham\, MA\, 02026
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Greater-Boston-7.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T090000
DTEND;TZID=America/New_York:20260418T100000
DTSTAMP:20260426T091031
CREATED:20260304T162713Z
LAST-MODIFIED:20260413T133046Z
UID:3834-1776502800-1776506400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 18th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-april/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/May-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260426T091031
CREATED:20260302T135608Z
LAST-MODIFIED:20260413T133004Z
UID:3439-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Hartford\, CT
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-hartford-ct-2026/
LOCATION:Dunkin’ Park\, 1214 Main Street\, Hartford\, CT\, 06103\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Hartford-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260426T091031
CREATED:20260303T180908Z
LAST-MODIFIED:20260413T133017Z
UID:3394-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Westchester County\, NY
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-westchester-county-ny-2026/
LOCATION:FDR State Park\, 2957 Crompond Rd\, Yorktown Heights\, NY\, 10598
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Westchester-NY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T090000
DTEND;TZID=America/New_York:20260503T120000
DTSTAMP:20260426T091031
CREATED:20251027T153058Z
LAST-MODIFIED:20251124T150700Z
UID:3406-1777798800-1777809600@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Philadelphia
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-philadelphia-2026/
LOCATION:Wilson Farm Park\, 500 Lee Road\, Chesterbrook\, PA\, 19087
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Greater-Philadelphia.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T190000
DTEND;TZID=America/New_York:20260504T203000
DTSTAMP:20260426T091031
CREATED:20260417T204113Z
LAST-MODIFIED:20260417T211159Z
UID:4384-1777921200-1777926600@www.nfnortheast.org
SUMMARY:NF Awareness Anthem - Calling all teens & young adults with NF!
DESCRIPTION:Join us for an inspiring evening where you can: \nShare your voice\, tell your story\, and express your creativity through music. Guided by a professional music therapist\, we’ll collaborate to create an original NF awareness song while connecting\, having fun\, and building community together. \nCome be a part of something meaningful and memorable! Ages 14-29 welcome. \n\n\n\nRegister Here
URL:https://www.nfnortheast.org/event/nf-awareness-anthem-calling-all-teens-young-adults-with-nf/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/YA-NF-Songbook-5-4-26-v.2-compressed.pdf.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T090000
DTEND;TZID=America/New_York:20260509T120000
DTSTAMP:20260426T091031
CREATED:20251027T154538Z
LAST-MODIFIED:20251223T140216Z
UID:3643-1778317200-1778328000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Rhode Island
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS 
URL:https://www.nfnortheast.org/event/steps2cure-nf-rhode-island/
LOCATION:Colt State Park\, Colt State Park\, Route 114\, Bristol\, RI\, 02809
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Rhode-Island.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T150000
DTSTAMP:20260426T091031
CREATED:20251001T161115Z
LAST-MODIFIED:20251226T165705Z
UID:3399-1778328000-1778338800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Central New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-central-new-york-2026/
LOCATION:Forest Park\, 21 Ripley Rd\, Camden\, NY\, 13316\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Camden.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T190000
DTEND;TZID=America/New_York:20260511T200000
DTSTAMP:20260426T091031
CREATED:20251001T164557Z
LAST-MODIFIED:20260213T200313Z
UID:3837-1778526000-1778529600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Monday\, May 11th at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-may/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/May-20261.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20260426T091031
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260426T091031
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260426T091031
CREATED:20251027T154537Z
LAST-MODIFIED:20260213T225914Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260426T091031
CREATED:20251027T153331Z
LAST-MODIFIED:20251124T150757Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260426T091031
CREATED:20251027T154308Z
LAST-MODIFIED:20251124T150517Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T060000
DTEND;TZID=America/New_York:20260919T150000
DTSTAMP:20260426T091031
CREATED:20260211T172249Z
LAST-MODIFIED:20260218T223338Z
UID:4193-1789797600-1789830000@www.nfnortheast.org
SUMMARY:Coast to the Cure 2026
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 15th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2026 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, SAG wagon\, post-ride lunch by a local food truck\, beer garden entrance (21+)\, and an NF Northeast can koozie. \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the registration site. \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2026/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/02/Coast-Web-Graphic-2026.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
END:VCALENDAR