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X-WR-CALNAME:Neurofibromatosis Northeast
X-ORIGINAL-URL:https://www.nfnortheast.org
X-WR-CALDESC:Events for Neurofibromatosis Northeast
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250329T103000
DTEND;TZID=America/New_York:20250329T123000
DTSTAMP:20250402T173235Z
CREATED:20250130T030114Z
LAST-MODIFIED:20250402T173235Z
UID:2706-1743244200-1743251400@www.nfnortheast.org
SUMMARY:Support and Tools for NF1 Caregivers
DESCRIPTION:Join NF Northeast for an educational event designed to support and connect caregivers of individuals with neurofibromatosis type 1 (NF1). This seminar will provide valuable resources\, insights\, and a sense of community for those caring for loved ones with NF1. This workshop is designed for adult caregivers\, offering expert guidance and shared experiences to navigate the challenges of NF1 care. There will be a Q&A session where caregivers will have an opportunity to ask our speakers any questions they have. \nDate: Saturday\, March 29th\nTime: 10:30am – 12:30pm\nLocation: Katonah Village Library in Katonah\, NY (Westchester County) \nRegister Here \nSpeakers: \n\nGurcharanjeet Kaur\, MD – Pediatric Neurology\, Columbia University Irving Medical Center\nAmanda L. Bergner\, MS\, LCGC – Genetic Counseling\, Columbia University Irving Medical Center\nJeffrey Malone\, LMHC – Mental Health Counselor\n\nFor caregivers attending with children\, an onsite activity will be available for kids ages 6-11. \nAdvance registration is encouraged\, but walk-ins are welcome as space allows. \nThank you to our sponsor:
URL:https://www.nfnortheast.org/event/support-and-tools-for-nf1-caregivers/
LOCATION:Katonah Village Library\, 26 Bedford Rd\, Katonah\, NY\, 10536\, United States
CATEGORIES:Community,Educational Event
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/NF1-Caregiver_WEB.png
ORGANIZER;CN="Allison D%E2%80%99Ottavio":MAILTO:adottavio@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T090000
DTEND;TZID=America/New_York:20250426T100000
DTSTAMP:20250429T143011Z
CREATED:20250108T004146Z
LAST-MODIFIED:20250429T143011Z
UID:2487-1745658000-1745661600@www.nfnortheast.org
SUMMARY:NF Community Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 26th at 9am for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-april25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/April-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250514T163000
DTEND;TZID=America/New_York:20250514T193000
DTSTAMP:20250520T144310Z
CREATED:20250205T143406Z
LAST-MODIFIED:20250520T144310Z
UID:2155-1747240200-1747251000@www.nfnortheast.org
SUMMARY:A Reason for 'Ritas: A Charitable Evening to Benefit NF Northeast
DESCRIPTION:Join us to celebrate NF Northeast with good food\, better drinks\, and the best people at Margaritaville Boston on Wednesday\, May 14! We’ll be hosting an unforgettable tropical evening at Margaritaville Boston\, located in the Faneuil Hall Marketplace in downtown Boston\, with appetizers\, beer & wine\, and lots of margaritas. \nPurchase Event Tickets \nDon’t miss out on our luxury trip auction\, where we’ll be awarding the highest bidder with a stunning 13-day river cruise on the Seine for two! This two-week long cruise from Paris to Normandy includes airfare from Boston\, MA with departure on August 4\, 2025 (major thanks to Grand Circle Travel for their generous trip donation). You can place your bids in advance and of course\, join the live action at the event. Learn more about this exciting auction item HERE.  Place your bid from advance (or afar) through our auction website below. \nLuxury Trip Auction Details / Place Your Bid \nThis event is open to everyone\, so gather your friends\, don your best tropical attire\, and escape into the island vibes in support of NF Northeast 🌴🌺🍹 \n  \nThank you to our sponsors:
URL:https://www.nfnortheast.org/event/a-reason-for-ritas-a-celebration-of-nf-northeast-at-margaritaville/
LOCATION:Margaritaville Boston\, 399-400 Faneuil Hall Marketplace\, Faneuil Hall Sq\, Boston\, MA\, 02109\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2024/06/Reason-for-Ritas.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250520T190000
DTEND;TZID=America/New_York:20250520T200000
DTSTAMP:20250520T232004Z
CREATED:20250108T005257Z
LAST-MODIFIED:20250520T232004Z
UID:2490-1747767600-1747771200@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, May 20th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-chat-may25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/May-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T190000
DTEND;TZID=America/New_York:20250617T200000
DTSTAMP:20250625T183514Z
CREATED:20250603T181005Z
LAST-MODIFIED:20250625T183514Z
UID:3025-1750186800-1750190400@www.nfnortheast.org
SUMMARY:NF Community Chat - June
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, June 17th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-june25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/June-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T190000
DTEND;TZID=America/New_York:20250715T200000
DTSTAMP:20250715T231729Z
CREATED:20250603T181451Z
LAST-MODIFIED:20250715T231729Z
UID:3032-1752606000-1752609600@www.nfnortheast.org
SUMMARY:NF Community Coffee Chat - July
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, July 15th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-july25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/July-25-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250814T190000
DTEND;TZID=America/New_York:20250814T200000
DTSTAMP:20250819T143524Z
CREATED:20250603T181223Z
LAST-MODIFIED:20250819T143524Z
UID:3030-1755198000-1755201600@www.nfnortheast.org
SUMMARY:NF Community Chat - August
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Thursday\, August 14th at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-august25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/06/August-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T060000
DTEND;TZID=America/New_York:20250906T150000
DTSTAMP:20250909T144929Z
CREATED:20250213T184755Z
LAST-MODIFIED:20250909T144929Z
UID:2791-1757138400-1757170800@www.nfnortheast.org
SUMMARY:Coast to the Cure 2025
DESCRIPTION:Coast to the Cure is more than just a ride—it’s a movement of hope\, resilience\, and community. Now in its 14th year\, this annual cycling event empowers riders to pedal with purpose\, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders. \nRegister for Coast to the Cure 2025 \nRegistration Fee – $50Fundraising Minimum – $350 \nRegistration fee includes rest stops with refreshments\, Coast to the Cure water bottle\, SAG wagon\, post-ride lunch by a local food truck\, and beer garden entrance (21+). \nThe ride starts and ends at Stage Fort Park in Gloucester\, MA and accommodates all cycling levels. Participants will have the option to choose from 24\, 40\, or 66 mile courses. Cycle along the rolling hills of Boston’s North Shore—see beautiful ocean views\, scenic horse and farm country\, state forests\, classic New England churches\, and picturesque coastal towns. \nRace Schedule:Registration – 6am66 Mile Ride start time – 7am40 Mile Ride start time – 8am24 Mile Ride start time – 9amFood Truck/Beer Garden – 11:30am to 3pm \nLunch tickets will be handed out upon arrival back at Stage Fort Park. Lunch tickets for friends and family who will be joining you are available for purchase on the Qgiv registration site ($25 per additional ticket). \nJoin us on this unforgettable journey to make a difference. With every pedal stroke\, you’re helping to bring hope\, resources\, and support to those living with NF—and moving us closer to a future where this genetic disorder is no longer a barrier to living life fully. \nFor more information contact Sara-Jane Griffin at sjgriffin@nfnortheast.org.\n  \nSpecial thanks to our Mission Sponsor: \n \nThank you to our Platinum Sponsor:
URL:https://www.nfnortheast.org/event/coast-to-the-cure-2025/
LOCATION:Stage Fort Park in Gloucester\, MA\, 24 Hough Ave\, Gloucester\, MA\, 01930\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Coast-Web-Graphic-2.png
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250920T090000
DTEND;TZID=America/New_York:20250920T100000
DTSTAMP:20250923T143418Z
CREATED:20250903T032139Z
LAST-MODIFIED:20250923T143418Z
UID:3238-1758358800-1758362400@www.nfnortheast.org
SUMMARY:NF Community Chat - September
DESCRIPTION:NF patients and families are invited to join us at 9am on Saturday\, September 20th for a virtual NF coffee chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-sept25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/September-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T190000
DTEND;TZID=America/New_York:20251021T200000
DTSTAMP:20250924T203224Z
CREATED:20250903T032410Z
LAST-MODIFIED:20250924T203224Z
UID:3241-1761073200-1761076800@www.nfnortheast.org
SUMMARY:NF Community Chat - October
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Tuesday\, October 21st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-oct25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/October-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251115T090000
DTEND;TZID=America/New_York:20251115T100000
DTSTAMP:20250924T203303Z
CREATED:20250924T202718Z
LAST-MODIFIED:20250924T203303Z
UID:3290-1763197200-1763200800@www.nfnortheast.org
SUMMARY:NF Community Chat - November
DESCRIPTION:NF patients and families are invited to join us at 9am on Saturday\, November 15th for a virtual NF coffee chat! These community-building chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-november25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/09/November-25.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20251222T195942Z
CREATED:20251201T213053Z
LAST-MODIFIED:20251222T195942Z
UID:3293-1766084400-1766088000@www.nfnortheast.org
SUMMARY:NF Holiday Community Chat - December
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm the evening of Thursday\, December 18th for a virtual\, holiday community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-december25/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2025/09/December-25-holiday2-1.jpg
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T190000
DTEND;TZID=America/New_York:20260122T200000
DTSTAMP:20260204T143346Z
CREATED:20231222T195936Z
LAST-MODIFIED:20260204T143346Z
UID:3820-1769108400-1769112000@www.nfnortheast.org
SUMMARY:NF Community Chat - January
DESCRIPTION:NF patients and their families/friends are invited to join us at 7pm EST the evening of Thursday\, January 22nd for a virtual community chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-community-chat-january/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/November-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260214T090000
DTEND;TZID=America/New_York:20260214T100000
DTSTAMP:20260128T172623Z
CREATED:20260106T232134Z
LAST-MODIFIED:20260128T172623Z
UID:3825-1771059600-1771063200@www.nfnortheast.org
SUMMARY:NF Coffee Chat - February
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, February 14th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-february/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/October-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260222T140000
DTEND;TZID=America/New_York:20260222T160000
DTSTAMP:20260205T183628Z
CREATED:20260205T183628Z
LAST-MODIFIED:20260205T183628Z
UID:4170-1771768800-1771776000@www.nfnortheast.org
SUMMARY:Family Bowling Event - Connecticut
DESCRIPTION:We’re thrilled to bring the Hartford area NF Northeast community together for an afternoon of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \n$13 per bowler (includes shoes) – pay at the door. Food and drink will be available for purchase.  RSVP encouraged. \nRSVP HERE.
URL:https://www.nfnortheast.org/event/family-bowling-connecticut/
LOCATION:Spare Time\, 177 Farmington Ave\, Bristol\, CT\, 06010\, United States
CATEGORIES:Community
ATTACH;FMTTYPE=image/jpeg:https://www.nfnortheast.org/wp-content/uploads/2026/02/HartfordBowlingbanner.jpg
ORGANIZER;CN="Sara-Jane Griffin":MAILTO:sjgriffin@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T190000
DTEND;TZID=America/New_York:20260303T200000
DTSTAMP:20251226T165900Z
CREATED:20251122T161744Z
LAST-MODIFIED:20251226T165900Z
UID:3829-1772564400-1772568000@www.nfnortheast.org
SUMMARY:NF Community Chat - March
DESCRIPTION:NF patients and their families/friends are invited to join us the evening of Tuesday\, March 3rd at 7pm EST for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-march/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/December-22-1.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T173000
DTEND;TZID=America/New_York:20260315T193000
DTSTAMP:20260306T185432Z
CREATED:20260215T230542Z
LAST-MODIFIED:20260306T185432Z
UID:2731-1773595800-1773603000@www.nfnortheast.org
SUMMARY:Community Bowling Night - Boston
DESCRIPTION:We’re thrilled to bring the Rhode Island and Boston area NF Northeast community together for a night of strikes\, spares\, and connection! Meet other families\, share experiences\, and enjoy some fun in a relaxed\, welcoming environment. All are welcome! \nThis event is free to attend – RSVP encouraged.  Bowling and shoes are complimentary\, thanks to the generosity of Kings Bowling. Food and drink will be available for purchase.\n\nRSVP Here
URL:https://www.nfnortheast.org/event/family-bowling-night-boston/
LOCATION:Kings Dedham – Legacy Place\, 600 Legacy Place\, Dedham\, MA\, 02026
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/02/Greater-Boston-7.png
ORGANIZER;CN="Lauren Gilbert":MAILTO:lgilbert@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T090000
DTEND;TZID=America/New_York:20260418T100000
DTSTAMP:20260520T151421Z
CREATED:20250304T162713Z
LAST-MODIFIED:20260520T151421Z
UID:3834-1776502800-1776506400@www.nfnortheast.org
SUMMARY:NF Coffee Chat - April
DESCRIPTION:NF patients and their families/friends are invited to join us the morning of Saturday\, April 18th at 9am EST for a community-building virtual coffee chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting!
URL:https://www.nfnortheast.org/event/nf-coffee-chat-april/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/12/May-22.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260413T133004Z
CREATED:20260302T135608Z
LAST-MODIFIED:20260413T133004Z
UID:3439-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Hartford\, CT
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-hartford-ct-2026/
LOCATION:Dunkin’ Park\, 1214 Main Street\, Hartford\, CT\, 06103\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Hartford-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260413T133017Z
CREATED:20260303T180908Z
LAST-MODIFIED:20260413T133017Z
UID:3394-1777712400-1777723200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Westchester County\, NY
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-westchester-county-ny-2026/
LOCATION:FDR State Park\, 2957 Crompond Rd\, Yorktown Heights\, NY\, 10598
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Westchester-NY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T090000
DTEND;TZID=America/New_York:20260503T120000
DTSTAMP:20251124T150700Z
CREATED:20251027T153058Z
LAST-MODIFIED:20251124T150700Z
UID:3406-1777798800-1777809600@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Philadelphia
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-philadelphia-2026/
LOCATION:Wilson Farm Park\, 500 Lee Road\, Chesterbrook\, PA\, 19087
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Greater-Philadelphia.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T190000
DTEND;TZID=America/New_York:20260504T203000
DTSTAMP:20260520T151335Z
CREATED:20250417T204113Z
LAST-MODIFIED:20260520T151335Z
UID:4384-1777921200-1777926600@www.nfnortheast.org
SUMMARY:NF Awareness Anthem - Calling all teens & young adults with NF!
DESCRIPTION:Join us for an inspiring evening where you can: \nShare your voice\, tell your story\, and express your creativity through music. Guided by a professional music therapist\, we’ll collaborate to create an original NF awareness song while connecting\, having fun\, and building community together. \nCome be a part of something meaningful and memorable! Ages 14-29 welcome. \n\n\n\nRegister Here
URL:https://www.nfnortheast.org/event/nf-awareness-anthem-calling-all-teens-young-adults-with-nf/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2026/04/YA-NF-Songbook-5-4-26-v.2-compressed.pdf.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T090000
DTEND;TZID=America/New_York:20260509T120000
DTSTAMP:20251223T140216Z
CREATED:20251027T154538Z
LAST-MODIFIED:20251223T140216Z
UID:3643-1778317200-1778328000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Rhode Island
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS 
URL:https://www.nfnortheast.org/event/steps2cure-nf-rhode-island/
LOCATION:Colt State Park\, Colt State Park\, Route 114\, Bristol\, RI\, 02809
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Rhode-Island.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T150000
DTSTAMP:20251226T165705Z
CREATED:20251001T161115Z
LAST-MODIFIED:20251226T165705Z
UID:3399-1778328000-1778338800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Central New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-central-new-york-2026/
LOCATION:Forest Park\, 21 Ripley Rd\, Camden\, NY\, 13316\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Camden.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T190000
DTEND;TZID=America/New_York:20260511T200000
DTSTAMP:20260429T150447Z
CREATED:20251001T164557Z
LAST-MODIFIED:20260429T150447Z
UID:3837-1778526000-1778529600@www.nfnortheast.org
SUMMARY:NF Community Chat - May
DESCRIPTION:NF patients and families are invited to join us at 7:00 PM on Monday\, May 11th\, for a virtual NF chat! These community-building chats offer a great chance to connect with others affected by NF and engage in relaxed conversations about everyday concerns and questions. We hope you can join us at one or all of our upcoming virtual chats! \nRegister Here \n*After registering\, you will receive a confirmation email containing information about joining the meeting
URL:https://www.nfnortheast.org/event/nf-community-chat-may/
LOCATION:Zoom
CATEGORIES:Community
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/May-20261.png
ORGANIZER;CN="Anne Patterson":MAILTO:apatterson@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T090000
DTEND;TZID=America/New_York:20260517T120000
DTSTAMP:20251124T151007Z
CREATED:20251001T164914Z
LAST-MODIFIED:20251124T151007Z
UID:3390-1779008400-1779019200@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Greater Boston
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-greater-boston-2026/
LOCATION:Lake Quannapowitt\, 2 Spaulding St\, Wakefield\, MA\, 01880\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/01/Greater-Boston.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T180000
DTEND;TZID=America/New_York:20260517T203000
DTSTAMP:20260203T235232Z
CREATED:20251010T110145Z
LAST-MODIFIED:20260203T235232Z
UID:3639-1779040800-1779049800@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Erie\, PA
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-erie-pa2026/
LOCATION:UPMC Park\, 831 French Street\, Erie\, PA\, 16501\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/11/Erie-PA-2.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T090000
DTEND;TZID=America/New_York:20260530T120000
DTSTAMP:20260609T140752Z
CREATED:20260119T164537Z
LAST-MODIFIED:20260609T140752Z
UID:3530-1780131600-1780142400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Lebanon\, NH
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-lebanon-nh-2026/
LOCATION:Dartmouth Hitchcock Medical Center\, One Medical Center Drive\, Lebanon\, NH\, 03756
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/New-Hampshire.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T100000
DTEND;TZID=America/New_York:20260531T130000
DTSTAMP:20260609T140829Z
CREATED:20260117T163331Z
LAST-MODIFIED:20260609T140829Z
UID:3402-1780221600-1780232400@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Western New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-western-new-york-2026/
LOCATION:Buffalo RiverWorks\, 359 Ganson Street\, Buffalo\, NY\, 14203\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/WNY.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T110000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260609T140808Z
CREATED:20260118T164308Z
LAST-MODIFIED:20260609T140808Z
UID:3526-1780225200-1780236000@www.nfnortheast.org
SUMMARY:Steps2Cure NF - Capital District New York
DESCRIPTION:Steps2Cure NF is more than a walk—it’s a powerful movement of hope and support for those affected by neurofibromatosis (NF). By joining us\, you’ll help fund NF Northeast’s essential programs that provide patient support\, advocate for better treatments\, and drive research\, making a real difference in the lives of individuals and families facing this challenging disorder. \nRegister or donate today and help illuminate the path to a brighter tomorrow for those living with NF. \nREGISTRATION WEBSITE AND EVENT DETAILS
URL:https://www.nfnortheast.org/event/steps2cure-nf-capital-district-new-york-2026/
LOCATION:Central Park\, 500 Iroquois Path\, Schenectady\, NY\, 12309\, United States
CATEGORIES:Community,Fundraiser
ATTACH;FMTTYPE=image/png:https://www.nfnortheast.org/wp-content/uploads/2025/10/Capital-District-1.png
ORGANIZER;CN="NF Northeast":MAILTO:info@nfnortheast.org
END:VEVENT
END:VCALENDAR